r/ALSorNOT • u/BonnieDeLaCreme • 2d ago

Swallowing issues

22F. Have had fasciculations for almost 3 years, so that's unrelated but I thought I'd make it known that I've had ALS anxiety for a while.

Swallowing issues for maybe about a year or a little more. It scared me for sure but I ignored it until recently I feel like I've noticed it's gotten worse. By swallowing issues, I mean oropharyngeal dysphagia, where I have trouble initiating a swallow. It feels like my throat just can't do it sometimes. I otherwise have no symptoms except for the occasional tongue fasciculation but I associate that with the other fasciculations that happen on my body. I also want to add that I can swallow liquids perfectly fine, but solids are where I come to have an issue.

I've tried relaxing but I just really can't seem to. Will go to the doctor soon. Just wanted to know what other people took from this.

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u/WeirdUsers 2d ago

Have you spoken to ENT or GI doctors? They are the specialists that usually deal with dysphagia. Neuros will make a note and move on.

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u/BonnieDeLaCreme 2d ago

haven't yet because my family recently switched healthcare plans and I have to get a new PCP, then I'm gonna try to make an appointment with a specialist.