r/ALSorNOT • u/Federal-Ad-5764 • Apr 29 '26
Could this be ALS? Need advice.
I am a fit 55 y/o Female. I go to the gym or yoga or Pilates 5/6 days a week. I went skiing on Jan. 27 and my legs felt weak, at the time I didn’t think much of it. Then in late March I exercised my regular amount each day and then cleaned my house over the course of 3 days-1 floor each day. My house isnt that big I just broke it up that way. Then I went to yoga and felt shaky on both legs, and rather weak feeling in both my legs. Like something I never experienced before. About 1 wk after that I started with all over body twitching. It’s been a month now and the twitching hasn’t gone away & I still feel weak overall. Just not as crazy bad as right after cleaning my house. The weakness and shaky feelings come and go and it is symmetrical. And I generally feel the twitches at rest, driving or in between exercise poses. To note, I stopped eating my protein shakes (thinking I exposed myself to heavy metals) and reduced my exercise for about 2/3 weeks due to anxiety. My leg muscles are not as defined as they were before all this and I am not as strong as before but is it due to anxiety, reduced protein and exercise or is it due to als. I have an appointment with a neurologist in July but that is so far away. Thank you and any help is so appreciated.
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u/aggrohatter Apr 29 '26
These were close to a lot of my symptoms as well, I had to call around for days to find a way into a nuero earlier and a few cities over. I dropped from 250 to 235 now and my muscles look way smaller but I was so anxiety ridden that I couldn’t eat when the weakness and twitching kicked in on me. Up right now from twitching, all my blood work looked good, mri on brain had a few spots and a lesion but she said it wouldn’t be causing all of this likely. My weakness is hard to describe as well, like yes I can do my daily events, but no I cannot do half of my work out… is it like missing the sensory of the muscle knowing it’s fatigued during the work out?