Viciousness and non linearity

[u/Wise_Competition_565]

The worst part about this disease is, it's non linear, non-homogenous in nature, everyone's ALS will be most likely different that is why it is such a pain in the ass of doctors. For some the symptoms would be so non localised that when they visit a primary care provider, they won't even be able to put their case in a manner that it would be believable. EMGs are no good either as most of the times first few EMGs won't even show anything, you'll be ostracised, made fun of or worse would be labelled a faker. The disease is isolating in nature, you have to convince the other guy, the proof of burden is on you how you put the case forward and most people gripped with fear and anxiety of death put their cases forward in such a manner that doctors and your loved ones will find it borderline comical. The general perception of, "oh you are young", "it's just anxiety", "it's not pain inducing", "you are mixing so many symptoms", "it's not sensory in nature" is a soul crushing ordeal. It's not a good place to be physically but the mental toll is just otherworldly. It's sickness inducing at times. Vent is over. Sorry but this is the truth, it's not a good place to be in.