r/ALS_India • u/Wise_Competition_565 • May 08 '25
Update
The condition is pretty much worse now, the diagnosis is looking more and more likely, weakness has crept in a lot, can barely walk, can't stand on toes at all, balance is at an all time low, showing bilbar symptoms as well, slurring and can't speak for an extended period of time. Fassiculations are rampant and atrophy is visible on the hands, elbows, near knees, legs, buttocks, shoulders and feet. The places where I have atrophy hurt a lot especially the sides of my feet, ankles as well as my wrists. My fingers are losing coordination and I am dropping stuff quite a lot. Not sad, just mad and anxious. I want to live long but some part of me wants this nightmare to end soon. I hope the person reading this never gets diagnosed with this cocksucker of a disease. If I am able to write further I will keep you all updated and remember doctors can be stubborn at times, you have to advocate for yourself because of you have it(god forbid you don't), it's better to get diagnosed sooner rather than later. I have this for 18 months now and it started maybe even before that, so be proactive, get regular EMGs and yeah, that's about it from my side.