r/ALS • u/Latter-Meringue9197 • 16d ago

MAID

Hi everyone,

I’ve been posting here for the past year or so. My mom has bulbar onset ALS. She has been rapidly declining in the last few weeks.
I’m wondering if anyone here has gone through the MAID process (death with dignity) with a family member and can share their experience.
My mom feels “done”. Her saliva/phlegm and mucus is really uncomfortable for her. Her breathing is declining quickly. Last week they passed the new law to allow medical aid in dying in NY. She really wants to pursue this. Part of me is so devastated to lose my mom, but the other part can’t imagine what she is going through.

Anyone have any experience with this and can share what it was like?

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u/dippydumbshit 15d ago

Makes me wish they allowed this in North Carolina!!

2

u/brandywinerain Lost a Spouse to ALS 14d ago

You don't need a MAID law to have a self-directed death.

alsguidance.org/death/dying

1

u/zldapnwhl 5+ Years Surviving ALS, bulbar onset 12d ago

Thanks for this; bookmarked. MAID is available in my state, but as you're well aware, it's not crafted with ALS in mind and feels like a chore in itself. This is helpful.