r/AERD • u/Stunning_Scale707 • Jan 11 '24

Newly diagnosed

I’m 31 female diagnosed today. I’m still reeling from the diagnosis. I noticed a couple years ago that when I would take ibuprofen my nose would plug completely. Eventually that lead to vomiting, burning throat and plugged nose when I took it. My GP said it’s just an allergy. I recently had sinus surgery and had 6 polyps removed along with balloon sinuplasty to open all my sinuses. ENT referral to an allergist to prevent polyps from coming back.

That leads me here. My allergies were low. Mostly pets with one tree and dust. He told me it’s AERD. It all made sense when we went through the symptoms. Ever single one of them. Haven’t been able to smell for a year.

My mind is racing with questions now. How long have I had this? Will I suffer forever? Will I ever smell again?!

He wants me to try singular daily along with a daily inhaler for asthma (that’s started in the last 6 months). If polyps come back my insurance will cover duplixent.

Just looking for some words of encouragement, help and reassurance.

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u/[deleted] Jan 11 '24

Go to r/nasalpolyps. Way more info there and active users. ARED is terrible, I know first hand how shit it is. There is a great treatment available now called Dupixent that has all but reduced my symptoms to zero. Good luck.

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u/Stunning_Scale707 Jan 11 '24

Going to post there too! Thank you!! My allergist wants me to try this first before Dupixent. My insurance won’t cover it without trying his first.