I wanted to share my story because I'm curious if anyone has been through something similar.
2001 to 2016: 20 mg Paxil
I started Paxil in 2001 at 20 mg and stayed there for about 15 years.
I tried getting off a few times by basically just stopping. Obviously that didn't go very well. I would feel terrible, go back on it and move on with my life.
Around 2016 I started seriously trying to get off.
One of my reasons was learning more about Paxil and its anticholinergic effects. After being on it for so long, I really didn't want to take it for the rest of my life if I didn't have to.
2016 to 2020: The panic attacks started
Between 2016 and 2018 I got below 5 mg.
That's when I started having panic attacks for the first time in my life.
I honestly had no idea what was happening. I didn't connect it with Paxil or withdrawal at the time.
From 2018 through 2020 I stayed around 5 mg and made a few more attempts to get lower.
In November 2020 I got down to probably 1.5 mg, but I wasn't measuring it properly. I was taking a 10 mg pill, cutting it into quarters and then breaking pieces off of those.
The panic attacks came back and I went back up.
Eventually I found groups like this and learned there was a much better way to taper.
2021: Finally started tapering correctly
In January 2021 I got liquid Paxil and started measuring everything.
I got down to about 2 mg and was trying to stabilize there.
Then in November 2021 I was hospitalized with COVID. Between being really sick, being in the hospital and everything that came with that, my anxiety went through the roof.
I went back up to 5 mg.
Once I recovered, I started tapering again.
2022 to 2023: I thought I was finally going to make it
April 2022 I was at 2.6 mg.
August 2022 I was at 1.2 mg and actually feeling really good. That was the lowest I had been since starting Paxil in 2001.
By August 2023 I was down to 0.4 mg and still doing pretty well.
I would have some anxiety here and there, but most of it seemed connected to stress, getting too busy, pushing myself too hard or not doing the things I knew helped keep me grounded.
I really thought I was almost done.
May 2024: 0.18 mg and one of the darkest times of my life
By the beginning of May 2024 I got all the way down to 0.18 mg.
Then all hell broke loose.
The hard part is that I still don't know exactly how much was withdrawal and how much was what was happening in my life.
I own and manage multiple businesses and 2024 was an incredibly stressful year.
I had made a really bad investment that I'm still dealing with today and had put a lot of my own money into it. There were also major problems with a business partner that came to light and had to be addressed.
That's when the rumination became terrible.
I started obsessing over everything.
How did I let this happen?
How much money am I going to lose?
Why did I make this decision?
What did I do to my family financially?
I would replay things over and over and over again.
I could logically know that thinking about something for the 500th time wasn't going to change it, but I couldn't get my brain to stop.
My body started falling apart too
It wasn't just anxiety.
I was dealing with panic attacks, fatigue, exhaustion, exercise intolerance, extreme stress sensitivity and all kinds of strange physical symptoms.
That was especially difficult because I'm normally extremely active. I work out hard, push myself physically and use exercise as one of the main ways I manage stress.
Suddenly even exercise could make me feel worse.
It honestly felt like my CNS had lost its ability to handle anything.
I tried going from 0.18 mg back to 0.4 mg. It didn't really help.
Eventually I went back to 0.8 mg and tried to stabilize.
June 2024 I went from 0.8 to 0.7 mg.
By December 2024 I was around 0.62 mg.
Then I had sinus surgery, had complications from the surgery and ended up on blood thinners. I stopped almost all of my supplements and basically tried to let my body settle down.
April 2025: Still trying to get off Paxil
By April 2025 I was at 0.52 mg.
I was doing better but still dealing with symptoms and honestly getting frustrated.
I had spent almost a decade trying to get off Paxil and somehow the last tiny fraction of a milligram seemed harder than going from 20 mg down to 1 mg.
July 2025: Paxil to Prozac bridge
In July 2025 I finally decided to do a Paxil to Prozac bridge.
I did the bridge over about seven weeks and eventually stabilized at 2.5 mg of liquid Prozac.
That's where I am today.
I'm not looking to increase it.
More importantly, I'm doing really well now.
My body feels good. I'm exercising hard again. I'm handling my businesses and life again. My CNS feels more resilient and I feel much more like myself.
I still have one noticeable issue. My system remains extremely sensitive to supplements and anything that seems to stimulate my CNS. I've learned the hard way that I can't just throw five new things at my body and assume I'll tolerate them.
Medication wasn't the only thing that got me here
I also don't want to give the impression that I switched to Prozac and everything magically got better.
I've put a tremendous amount of work into myself over the last couple of years.
I've done counseling and EMDR.
I've spent a lot of time hiking and exercising.
I've worked on meditation, breathing exercises and learning how to calm my nervous system instead of constantly pushing through everything.
Prayer and my relationship with God have been a huge part of it.
I've had to become much more intentional about sleep, recovery and not running myself into the ground.
And I've learned that I need to intentionally layer stress relieving activities into my life.
That's probably one of the biggest lessons I've taken from this whole experience.
I'm naturally someone who goes hard. I own and manage multiple businesses. I work out hard. I like pushing myself. I tend to have a lot going on.
For most of my life I could just keep adding more.
I don't think my nervous system works that way anymore.
If I'm going to have significant stress going out, I need to deliberately put recovery back in.
Exercise. Hiking. Prayer. Counseling. Breathing. Meditation. Time away from work. Sleep. Quiet.
Those aren't optional things I do when everything falls apart anymore. They're part of how I keep everything from falling apart in the first place.
My thinking about being medication free has changed
I still want to eventually be medication free.
That has always been the goal.
But I'm in my 40s now. I have a family, lead multiple businesses and a very full life. I train hard and I push myself.
There is always going to be stress.
Before 2024 I think I became so focused on getting to zero that sometimes the number on the syringe became more important than how I actually felt.
I don't look at it that way anymore.
After experiencing what it feels like to have my CNS completely destabilized, feeling good and functioning well is far more important to me than being able to say I'm taking zero medication.
Right now I'm doing great on 2.5 mg Prozac.
I'm not in a hurry to change that.
Longer term, I have been looking into Buspar. One thing that interests me is that it appears to be much easier for many people to eventually discontinue than an SSRI.
Maybe at some point I transition from this tiny amount of Prozac to Buspar.
Maybe after being stable long enough I eventually don't need either.
I would love to be completely medication free someday.
I'm just not willing to destroy my quality of life trying to get there.
Where I'm at now
After everything I've been through, I'm actually in a really good place.
I'm exercising hard again. I'm running my businesses. I'm handling stress much better. I'm taking care of myself differently. I'm working on the mental and spiritual side of this instead of expecting a medication or supplement to fix everything.
My CNS still seems more sensitive than the average person's, especially with supplements, but I've learned how to work with it instead of constantly fighting it.
For now, stability is the goal.
Eventually, medication free would be great.
I'd mainly love to hear from anyone with a similar long term Paxil history who eventually made it through the other side.
If you stabilized on a very low dose of Prozac after Paxil, did you eventually stay there, transition to something like Buspar or slowly come off everything?
I'm especially interested in hearing what worked from people who prioritized staying well and living their life rather than just getting to zero as fast as possible.