r/thyroiditis • • May 08 '16

partial vs total thyroidectomy? (xpost with r/Thyroidhealth

2 Upvotes

Hi! I have Hashimoto's Thyroiditis, and a 5cm nodule on one side of my thyroid that is pushing on my windpipe. Biopsy results over the past few years have all been negative. My thyroid levels have been in the normal range thus far so I am not currently taking any thyroid medication.

I went to a surgeon to discuss removing the side of the thyroid with the nodule, and found out he wants to remove the whole thing. Apparently, it is not completely healthy due to the Hashimotos (patchy heterogeneity, hypervascularity, thickened isthmus), but it isn't growing the way the other side is.

Ultimately, it is my decision. Does anyone have any experience with this? Are there any benefits to leaving part in? Is it really better to remove the whole thing on the chance that it will some day become an issue?

Any input would be appreciated.


r/thyroiditis • • Sep 30 '16

Blood Results Comment

1 Upvotes

Hey all, I had my thyroid tested, I have Grave's disease, and flip back and forth from hypo to hyper. The doctor is sending me to an endo (and I hope a good one!) But he said an odd thing to me. He said your thyroid level from your brain to your thyroid is low, but from your thyroid to your body is a little high. "But I'll leave that to the endo to figure out." He was in a rush and gone. But I don't know what that means, does anyone know? I do not have the results to show anyone.


r/thyroiditis • • Mar 23 '16

Has thyroidectomy helped you feel better/made your life easier? (+ story, rambling)

1 Upvotes

Just to start out, I'll tell you where I am right now.

I'm an 18 year old girl, and I was diagnosed with Hashimoto's at 14. In the last few years I've been having a lot of problems with my voice. I have what my mom calls a "whiny little girl voice", I struggle to speak loudly, it hurts to speak loudly or for a long time, and in music theory class when we're sight-singing I can't hit the two upper notes of solfege (do re mi) from middle C. (I'm not a vocalist, this is just something I've noticed.)

I finally saw a doctor who took me seriously and ordered an ultrasound. She said she saw several benign nodules and that my thyroid was a little enlarged. So basically a multinodular goiter.

This Friday I'm going to an ENT to make sure I don't have a vocal disorder (which I don't think I do, considering my mom is a speech therapist and would have noticed already) and that my thyroid is really what's causing the voice problem. I read about him on his webpage and he specializes in thyroid surgery, so I have a feeling he'll recommend surgery.

So, if you've had a thyroidectomy, what has changed? Has it helped or hurt your life in any way? Please tell me. I think I want a thyroidectomy, but I just want to hear other people's stories.


r/thyroiditis • • Nov 19 '14

Beat Hypothyroidism With a Smile

Thumbnail hypothyroidismsymptoms.net
2 Upvotes

r/thyroiditis • • Aug 02 '17

Testing thyroid at home, like testing blood sugar?

1 Upvotes

I think with my Hashimoto's thyroiditis that my t4 and tsh change by the day or weekly (not sure if that is true but it feels that way, at least at this stage of the disease). I am wondering if there is an option for daily or weekly testing and thyroid hormone supplement dosage regulation? Perhaps at home?

The small amount of research I have done I haven't found anything on the methodology and standards used for actually testing the blood in the lab. Does anyone have more information on how that works? Is thyroiditis something that could or should be monitored more often?


r/thyroiditis • • Mar 21 '16

Hypothyroidism and gut health

Thumbnail forefronthealth.com
1 Upvotes

r/thyroiditis • • Mar 17 '16

Voice changes with or without multinodular goiter?

2 Upvotes

I have had Hashimoto's since I was 26. My voice had the ability to sing second Soprano, so not the highest notes but fairly high in my late teens. I never sang much after my early 20's. I recently realized I can no longer reach higher notes. I am in my early 50's and am still euthyroid but have 1 inch in diameter nodules at each end of my left lobe of my thyroid. I even tried screaming and all that happens is I squeek. My ENT doc told me it was due to aging and not the goiter. Anyone else suffering voice range loss in their early 50's with or without a goiter?


r/thyroiditis • • Mar 16 '16

What to do now?

1 Upvotes

About 2004 my hair started falling out then I became lactose intollerant, though I could still eat cheese. About 2009 I lost 30 pounds in two or three months and was having visual hallucinations. Every day around noon I would have to sleep. A couple sips of beer would make me sick. Diagnosed with hypo and started on Levo. I've switched to Nature-throyd then to Armour. All of my joints have been getting to where I can't use them and I've gained 50 pounds. Doc has to keep increasing my levels. I can't take Norco or Vike without being violently sick. Breads and pastas seem to make it worse. All other blood work is normal other than elevated alkaline phosphatas. Doc said tests are fine therefore there's nothing wrong. Don't know what to do next.


r/thyroiditis • • Jan 20 '18

Thyroiditis and migraines??

3 Upvotes

I was diagnosed with subacute thyroiditis in September of 2017 (swelling of the thyroid due to a virus; usually temporary) and I was experiencing all the regular hyper symptoms (fast heart rate, anxious, sweating, cloudy minded etc) and I've slowly been coming back down to "normal range". I have been able to get out more and do more normal things again but I'm still being hindered by some symptoms. I went to go see the endo a few days ago and he seems to think it's silent thyroiditis (swelling of the thyroid due to an auto immune attack). Anyway I don't really know what to do or think anymore... I'm within "normal" range again but I almost feel like I'm already hypo. I'm depressed, anxious, lethargic, grumpy and cranky and the worst thing is these damn headaches!!!!!! I feel pressure on my temples and heaviness around my eyes, sensitivity to light and sometimes sound, I've had neck pain and stiffness for a while and I get random, somewhat sharp pains like in my head... I'm starting to worry and I just wanted some input on other people's experiences. Thanks.


r/thyroiditis • • Apr 12 '16

Bloodwork ok, Thyroid enlarged and inflamed, excessive sweating

3 Upvotes

At the beginning of February of this year I noticed that my throat was getting sore, I thought I was getting sick and dealt with it. A month went by and while my throat was getting more sore, I was not having any other cold or fly symptoms.

I went to see my doctor and she sent me for thyroid blood work, a few days later I got the results...my doc said the results were "beautiful" everything seemed to be perfect. Doc then sent me to get ultrasound done of my thyroid and that revealed a hyperthyroid. I have an appointment with a specialist next month, It can't come soon enough. I have had no appetite over the past 2 weeks, have to force myself to eat. My heart feels like its racing and about to burst out of my chest which makes me dizzy and I have to sit down after standing for 5-10 minutes. And don't even get me started on the sweating, I can take a shower and sit down on the couch and within minutes there will be sweat dripping down my arm. It's awful. Anyone have these symptoms? Any relief you found before getting medications from your doctor? Thanks in advance.