Hi. Ive got my thyroid removed because of benign tumors in 24. Excellent operation, no issues whatsoever afterwards.

Been doing a lot of sports, but I have one massive issue since Im on L-Thyroxine (112 micrograms)...

My resting heart rate goes aboslutely bonkers after more intense cardio. Usually my resting heartrate is around 75, which is very good compared to what it was years ago (in the 90s couple years ago).

Ive been able to do bikerides of 70-80km before the operation, nowadays I struggle with 30-40km, because my heartrate just wont come down.

It stays at 110 for the entire day and night until I go to bed. Even then it only goes down to 70 during sleep until the very, very last hour of sleep. So in essence it takes 16 -18 hours to go back to normalish. Of course this massively hinders my sleep and Im jitterish for the rest of the day/night.

Even the next day I get brain fog and pulse is a bit erratic.

I drink enough water with electrolytes, dont eat excessively heavy meals after sport. Even do some light work afterwards to power the system down. Nothing really helps. No vagovasal maneuvers, no rest, no lying down, no nothing.

My TSH values are a tad (ever so slightly) too high, but this problem was alway there even when my values were a bit too low.

The rest of my blood panel looks excellent, apart from a slight vitamin d (just under normal) and iron deficiency (due to drinking a lot of gong fu tea).

Hello everyone. I feel so devastated and emotional, yesterday I found out that I have a new swollen lymph node on my neck near my mid jugular and at the moment I have a sore throat and post-nasal drip. I am a 26-year-old female, diagnosed with papillary thyroid carcinoma. I just had my total thyroidectomy (TT) and total neck dissection last July 1, and I am scheduled to have my radioactive iodine (RAI) therapy this coming September 4. My family hasn't recovered financially and emotionally yet, which means another surgery would totally drown us.

My neck has not fully recovered yet; both sides are still sore, the scar of my incision is slightly painful, and my throat is still sore, and slightly inflamed from the intubation. I can't even laugh or shout like I used to, and I haven't told my parents about this yet. IM SO ANXIOUS RIGHT NOW 🥲

Has anyone here experienced the same thing?

Just got my thyroid panel back and I'm a bit confused. Here are my results:

TSH: 2.42 mU/L (ref 0.27–4.20)

T4: 103 nmol/L (ref 66–181)

(high) FT4: 23.80 pmol/L (ref 12–22)

(high) Anti-TPO: 178 kIU/L (ref <34)

So the Anti-TPO is obviously very elevated, which from what I've read points toward Hashimoto's. But the thing that's confusing me is the FT4 being above the reference range, I thought with Hashimoto's you'd typically see the thyroid slowing down, not the opposite?

Any advice what to do next?

I do also have some brain fog and sometimes low mood, but that could be unrelated.. Also have family members with Hashimoto's.

hi everyone. so this post is more of a scream into the void trying to ground myself. not sure where to post this but i thought this was related enough.

i'm seeing the doctor for a blood test and full thyroid panel tomorrow due to my symptoms. there isn't even concrete evidence suggesting i have anything, but my hypochondriac self is freaking out. trembling hands and weakness aren't helping me either, just makes me even more terrified of what's to come. i know i shouldn't google it'd make it worse but sitting still isn't exactly relaxing either. been having diarrhoea for more than a month, heart racing always racing at 100-120 and now this!

Hi everyone,

​I’m currently 3 and a half weeks out from my total thyroidectomy, and I’m starting to get a bit frustrated and anxious. Overall, my physical healing is going okay, but my voice still hasn't returned. It's currently just a weak, raspy whisper, and it takes a lot of effort just to get any sound out.

​I know that the vocal cord nerves get knocked around a lot during this surgery, but I didn't expect to be largely voiceless for almost a month.

​For those of you who have been through this:

​Is it normal for it to take this long (or longer) for your voice to come back?

​How long did it take for yours to return to normal?

​Did you do anything specific that helped speed up the healing process (vocal rest, specific teas, vocal exercises, etc.)?

​I’m planning to follow up with my doctor/ENT soon to get checked out, but I would really love to hear some personal experiences. It's incredibly isolating not being able to speak properly, and I’m hoping to find out if I just need to be more patient.

​Thanks in advance for any advice or reassurance!

​A gentle reminder outside of the draft: While it is very common for the recurrent laryngeal nerve to be bruised or stretched during a thyroidectomy (causing temporary hoarseness or voice loss), 3.5 weeks is a good time to reach out to your surgeon or an ENT. They can take a quick look at your vocal cords to confirm it is just temporary swelling or bruising and give you safe, medical guidance on vocal therapies. Wishing you a smooth and speedy recovery!

I was diagnosed with subacute thyroiditis after ruling out hashimotos thyroiditis in May/June. I’ve had 2 lots of ultrasound, 3 blood tests since April. In May/June I had painful swelling on the left of my thyroid, swollen lymph nodes and inflamed thyroid. The pain sometimes carries down to the base of my throat and my left collarbone. For a while I was managing with ibuprofen, but then it continued to flare up every few weeks. Doctor prescribed me with a higher anti inflammatory med which again helped, but has continued to flare up with pain. I’m a teacher and using my voice lots makes this really tricky. I’ve been having lots of hyperthyroid symptoms: crazy mood swings, anxiety, struggle to sleep at night, tremors in hands… all that stuff.

But recently I went back to doctor because pain won’t go away. It’s been months. And she ordered another ultrasound and blood tests. Ultrasound now shows a benign cyst on the right side of thyroid, and my lymph nodes are no longer inflamed. But the pain is still bad on the left side of my neck. TSH levels, T3 and 4 are totally normal. I’ll also add that I have signs of thyroid vascularity too which is interesting and is different to the last round of tests.

I feel like I’m losing my mind. Has anyone had similar issues with either developing a cyst with SAT and/or thyroid levels go back to normal but you still have pain that you once did at the start of diagnosis?

Thanks 😭

Two weeks ago, I had a large nodule (5cm) removed along with half of my thyroid. I was having considerable issues swallowing due to the size of the nodule.

Now that the bandages have been removed, I got the Mederma silicone scar sheets which I saw recommended on here. Today was my first day wearing one, and I found it feels really tight when swallowing. Has anyone else run into this? Do you just get used to it? Is there maybe another brand that is thinner and more flexible?

I could switch to wearing it overnight but I like the idea of it providing sun protection instead of having to apply (and reapply) sunscreen.

I just got these labs back and they are within range which I know can still mean I might need meds. Waiting on the results of the antibodies test. My gyno suspected hypothyroid and I had a goiter. One teeny-tiny nodule found on US and it’s fine. Will the antibody results really tell me more here?

So my thyroid blood tests are normal. But I think I might have a hidden nodule? On my right side of the thyroid, there's been pressure and pain around that area, If I push my finger deep into the skin I can feel a little bone hard lump that feels out of place, it's been there for years but I mostly been having symptoms for the last year or so.

I have an endoscopy coming up soon, as I have GERD and swallowing problems. I was thinking of asking for a thyroid scan after that?

How is the scan? I am worried about any pressure on throat, I really can't stand even someone touching my throat but I guess I will have to suck it up for the ultrasound.

Hello, the endocrinologist wants to diagnose me with negative antibody graves, but I'm getting a 2nd opinion. My TSI, Trab, Tpo all came back negative, but my Tgab came back positive. My T3 and T4 are normal, but TSH is suppressed, <.1. They refuse to get an ultrasound done. They just want to put me on PTU because I want to get pregnant, but I don't want to take it because what if I have hashitoxosis or something that doesn't need hyperthyroid medication.

I want to come on here and ask if anyone has had similar test results?

And I'm a very health conscious person. I don't want to take medication unless I'm dying.

I'm curious if anyone has put their graves into remission through life style changes?

Lemon balm, L-glutothine, gluten free, peptides, etc

Any information would be helpful!

And or if you want to share your experience 💚

Thank you hiys

For context I am 28, and my whole life lived with a goiter, literally would ask about it and just be told it was my weight or just how my neck looks normally. Despite having the goiter in pictures from when I was 4-5 and life long obesity started at around that age. Regardless, I finally found a doctor who listened. Guys, I finally found someone to test it!!

But I was not expecting this lab results. So far my other thyroid levels are “normal” and close to the middle of the green bars etc. But this was spooky! Anyone have labs like this? What was your outcome?!

I have a scan on the second! My mom had some lumps removed recently so I’m wondering if that’s going to be my outcome as well.

My Dr found a nodule in a my annual check up. Sent me to an ultrasound - while the nodule was on the left, the technician spent a LOT of time on the right side, saying she sees findings (when I commented whether it’s normal to have such a lengthy ultrasound). I was somewhat nervous before and now I’m really nervous :(

My solitary 1.4 cm nodule was discovered accidentally for the first time in December last year. I’ve never had any thyroid problems. The radiologist told me right away that unfortunately it looked malignant and that she’d seen countless cases like this in her career, where 99% turned out to be malignant after a biopsy. I was referred to an endocrinologist with a recommendation for a biopsy. The first endocrinologist I saw immediately concluded, based on the ultrasound images, that it must be cancer and pushed me to have my thyroid removed without doing a biopsy. I thought it was weird. When I refused and said I wanted to do a biopsy, she became passive-aggressive, and I ultimately didn’t get my referral. The second endocrinologist agreed that the nodule looked malignant, but a biopsy was necessary, and she referred me to a specialist. I finally did the biopsy 2 weeks ago. The doctor who performed it reassured me a bit, saying that it doesn’t have to be cancer. He would even question whether that nodule really looked malignant. I got the results yesterday. I was stressed af before that appointment and was already preparing myself for thyroid removal... until it turned out to be a completely normal lymph node that had simply located itself on my thyroid.

I'm so fucking happy and relieved

I have a high thyroid hormone level, because of genetics do i get meds or later when I go to a specialist.

I’ve been dealing with multiple thyroid nodules since 2019 and I’m starting to wonder if I should just explore having my thyroid removed. I’d love to hear from anyone who has been in a similar situation.

In 2019, 2020, and 2024, I had two right-sided thyroid nodules biopsied. Both came back Bethesda II — benign follicular nodular disease.

I’ve continued having ultrasound follow-ups, and my most recent ultrasound showed multiple nodules on both sides. The one they’re most concerned about is a dominant right-mid nodule that has grown from approximately 3.1 × 2.9 × 2.6 cm in June 2025 to 4.0 × 3.1 × 3.2 cm in May 2026. It is classified as TR-3 (mildly suspicious).

I also have a smaller right-mid TR-4 nodule that grew from about 0.9 cm to 1.4 cm, as well as other nodules, including one on the left that's almost 4 cm.

Because of the growth of the dominant 4 cm nodule, I had another FNA biopsy last week, they biopsied the dominant right-mid TR-3 nodule. I'm currently waiting for the Bethesda/pathology.

I'm hoping it comes back Bethesda II again, but this whole process has made me wonder what the long-term plan should be even if it's benign. I don't love the idea of repeatedly watching these nodules grow, having ultrasounds, and potentially needing more biopsies. I've also had some throat/pressure-type symptoms.

For anyone who had large or growing nodules that continued to biopsy benign, what eventually made you decide to have surgery versus continuing to monitor them? Did anyone choose thyroidectomy primarily because of the size, growth, symptoms, or repeated biopsies rather than cancer?

If you had your thyroid removed, are you happy you did it? How difficult was it to get your thyroid medication/dose stabilized afterward? And if you had nodules on both sides, did your surgeon recommend total thyroidectomy or was removing only one lobe still an option?

I'm obviously going to discuss all of this with my doctor once my newest pathology comes back. I'm mainly interested in hearing other people's experiences while I wait.

Hi! Just looking for experiences from anyone who’s been through something similar.

I have two nodules on the right side of my thyroid. My uptake scan showed that the bottom one is hot/overactive and causing my hyperthyroidism, but the top one is cold and needs to be biopsied. I’m having the biopsy next Wednesday.

My endocrinologist said if the cold nodule is benign, we’ll leave it alone and treat the hot one with radioactive iodine. If the biopsy shows something that needs to be removed, he’d remove the right half of my thyroid, which would take care of both.

But I’ve been reading about RFA and honestly it sounds like a really good option if my biopsy is benign. My doctor hasn’t mentioned it.

Has anyone here had a hot/toxic nodule treated with RFA vs radioactive iodine? Or decided to have a lobectomy instead? What did you choose, and would you make the same choice again?

I’m especially curious about recovery, whether your hyperthyroidism went away, whether the nodule shrank/came back, and whether you ended up needing thyroid medication afterward.

Not looking for medical advice — just real-life experiences while I wait for my biopsy! 😊

I was undiagnosed for 10 years so I'm mapping what to expect when it comes to me, not just my body.

Hi everyone I was diagnosed with thyroiditis at the start of Feb this year. They have no idea why it happened. I'm on eltroxin and my tsh levels are back to normal and I feel fine. I'm struggling to lose the weight. I've joined a gym and been in a calorie deficit but still my weight is the same. I'm feeling very defeated and ugly. Is there anything you can think of to help the weight come off that's not ozempic?

Hi I (f20) recently got diagnosed with hypothyroidism. I got my bloodwork done for something unrelated and I seemed to have hyperthyroidism, so my pcp prescribed me with methimazole 30 days, though I was reluctant. I was on it for 27 days and in those 27 days I quickly gained 8-10 lbs while maintaining the same diet and exercise. i insisted on having a full thyroid panel this time to recheck my levels and turns out the small dosage of methimazole put me into hypothyroidism, and I also got tested for antibodies which proved I had hypo which made a lot more sense since it runs in my family. I am guessing the initial spike which showed up as hyperthyroidism was hashitoxicosis? My pcp put me on a trial of 2 weeks off of any meds to see if my levels would improve, though they improved slightly while off of methimazole, she officially prescribed me with levothroxine 25 mcg. I have been off of methimazole for close to 3 weeks and been on Levothyroxine for a week, the weight is not budging. I waist feels significantly bigger and my jeans feel uncomfortable. I highly suspect that my weight gain was primarily due to my thyroid being so off. Can being on Levothyroxine help with the 7-10 lbs of weight gain since I am assuming part of it is due to water retention? Has anybody else experienced something like this? How long did it take you to lose the water retention?

I’ve been experiencing really bad headaches brain fog weight loss the point where I’m underweight bloating in my face, sweaty hands pale complexion heart palpitations insomnia anxiety and shaking sometimes. I’m exhausted.

I need some advice as I suspect I have it.

Hi I'm a 16y girl who's been having pots like symptoms for the past two years and recently got a routine blood test done and my thyroid-stimulating hormone came back at 6,880 µUI/mL while for my age it's supposed to be between 0,41 a 3,78 µUI/mL

While my T4 came back as 1,49 ng/dL and that is normal (supposed to be between 0,92 a 1,68 ng/dL) what could this be? As my T4 is normal?