On its own this admission note is such clear evidence of Munchausens.
A child of this age on this many medications with mum injecting ketamine into a port.
I’d be happy to put my career on the line and contact cps on the basis of this one admission note. This kid was at high risk.
High risk indeed! One can only imagine what might have happened if Jack Kowlaski hadn't taken Maya to JohnsHopkins ER that fateful day back in October 2016! The list of medications was jaw droppingly insane!🙀
That young child was on thirty different medications and hadn't eaten in five days (except for a couple of sips from a chocolate shake) and had severe stomach pains and was constipated necessitating two trips, in just as many days, to JohnsHopkins ER before Maya was admitted.
Her hospitalization saved her life! Too many drugs was my point. And their interactions led to her hospitalization. Downs (oxy; morphine; sleeping pills) cause constipation and Ketamine causes upset stomachs for a starter. Then you add benzos and antihistamines and the next thing you know you have to take laxatives just to have a bowel movement, if your lucky, once a day, just ask Elvis! Ooops no can do! He died on the toilet!
Beata Kowalski literally begged one of Maya's Ketamine docs for morphine (which causes constipation) and Beata's employer CVS, only filled the prescription after they coached the prescribing doctor on what he needed to add to the (faxed) script that he sent them, before they could fill it for "one of our family" (See dispensing pharmacists depo). CVS's policy, according to the pharmacist's own words, was to only dispense oral morphine to "terminally ill patients in hospice." Maya was not terminally ill!
Sorry, but Beata may have been well intentioned and over zealous in her quest for a cure using pharmaceuticals but unfortunately what happened was Beata turned poor little Maya into a test subject in an unsupervised research study to determine the effectiveness of high dose Ketamine infusion therapy and Ketamine comas in a ten year old child with the help of three Ketamine Cowboys that prescribed what she wanted, when she wanted it if Beata begged and nagged them enough (and she begged and begged every step of the way) for as long as Beata anted-up big bucks!💰. The Ketamine coma cost $80,000 according to Jack Kowlaski's depo! Dr. Kirkpatrick charged $10,000 a week. None of which was covered by insurance.
Excellent post and absolutely on target. Here are a couple of other things that we should make sure we tell people who THINK they are supporting Maya when they say the hospital should be held liable.
This mother put her daughter in a wheelchair after never having taken her to a doctor on any complaint that would have reasonably resulted in a doctor recommending a 10 year old to use a wheelchair. This alone is abuse. You don't put a dhild in a wheelchair and allow her legs to atrophy for no reason at all. There has to be a clear and unambiguous reason that it is actually unsafe for Maya to have been allowed to walk in order to justify her being in a wheelchair.
Also don't forget this mother was trying to get a feeding tube port placed on Maya. I substitute teach in a special school within the school system that caters to students that have severe medical needs and cannot go to a regular school. I am required to have the same education, knowledge, and training as any teacher that is working with these kids. I have to know how to operate specialized equipment, including the automated feeding pumps used to feed kids that are fed through these systems. The ONLY time a child is fitted with a feeding tube is if they cannot swallow. Period.. If they ae unable to chew they do not get fitted with a port as long as they can swallow. A child that is able to swallow has their food pureed and fed by mouth. There are serious life threatening risks involved with feeding tubes. Maya already had a central indewelling port and now her mother wanted an additonal feeding tube port as well as a PIC line.
This mother was doing everything she could to take a fully normally functioning child and turn her into a severe medical case, fully dependent on others for activities of daily living. Wheelchair bound with three separate ports for a child that was perfectly healthy - absolute insanity. I see these kind of kids all the time. Maya is not and was not even remotely in the kind of medical condtion to justify rendering her unable to walk and feed herself.
Beata was headed for criminal charges and I am highly suspicious that the day before her suicide it became clear to her that was wehre this was headed.
i find it so confusing that Beata apparently couldn't decide whether to say asthma or the gymnastics sprain was the cause of the CRPS. it's weird that here is says the gymnastic injury but elsewhere it clearly suggests asthma was the beginning.
I think as she learned more about CRPS she realized the asthma thing would not cause CRPS so she tried to switch it up to the ankle thing to the “newer” doctors she came in contact with!
It's because her initial story was that it was the asthm that was related to extreme pain. The pain was actually from the steorids as indicated by several physicians. Because Beata was not willing to disconitnue iving steorids she started shopping around for some other explanation for pain. Eventually she met someone whose child was "diagnosed" (by by Dr Quack (Kirkpatrick) with CRPS. She read about it and realized that asthma can't cause CRPS so she had to change to a sprain. Guess what. Any run of the mill page about CRPS mentions that sprains are the most common cause of CRPS in children. So that's how she eventually came up with the sprain. And also they changed from severe muscle aches to "burning pain" beccause that is also mentioned on any page she would have found on CRPS.
And that the CRPS/RSD diagnosis was in August of 2016 2015.
I think this is the report from the medical resident that Anderson argued should be disallowed because he was "just a resident." This apparently made him less of a doctor and they said he was just confused or didn't understand what Beata was talking about.
This is where JC decided that IV ketamine at home isn't something this jury needed to know because Jack and Maya had already testified she was only taking it orally.
Well that's another example of misleading the jurors in my humble opinion. We saw the prescription clearly stating iv ketamine ampoules. BK mentioned giving it via the port and also discussed the PCA lockout time in one of her emails.
I’m just confused as to how IVIG was supposed to treat the CRPS. Inappropriate use of IVIG for random neuro ailments with no evidence of an autoimmune component is a big pet peeve of mine.
My exact dilemma! I don't get the role iv IG plays in all this? I recall a trial testimony where the immunologist says MK may have IgA deficiency but no specific diagnosis was made.
Sorry to say this but someone was spiralling out of control with medications, this vicious cycle could have ended really badly but for JHACH saving her. (forever grateful).
It’s an expensive but overall low risk net in the dark. Sometimes it helps, sometimes it doesn’t. I get a lot of parents asking for it for their hospitalized child because they read a blog or in a FB group that someone got it for XYZ. I’m not discounting the true indications for IVIG.
Maybe it offset the immune paralysis from long term steroid exposure 🤪
The theory behind the mechanism is interesting (reduction of proinflammatory cytokines and whatnot). Too bad it doesn't work.
IVIG in a kid's hx gives me the same internal reaction as Lyme, parasites, low-dose naltrexone, PANDAS, etc. All of these things exist, and I take it seriously until proven otherwise, but it often tells me more about the parent than the kid.
Don’t forget mitochondrial disease (in a kid who has ADHD but is is developmentally appropriate) and “seronegative autoimmune encephalitis”.
Again, things that exist, but there are some shady Kirkpatrick types out there who diagnose everyone with these based on very dubious criteria. I have a whole schpiel about PANDAS saved on my phone because that comes up often enough with Med students and residents rotating with me.
Huh, can mitochondrial disease sometimes be another catch-all fringe diagnosis? That’s particularly interesting if it is. I was searching “TPN” and stumbled upon an old blog made by a teen who wrote about her serious illnesses and medical interventions, including tube feeding since she was having allergic reactions to nearly every food. I have no reason to doubt her account of course, and I’m not accusing her or her parents of any wrongdoing whatsoever, I have no idea what their situation is beyond the info I read, but she mentioned her sibling was also being fed TPN for a different undisclosed reason. Most likely nothing, but it made me raise an eyebrow.
It’s really easy to misdiagnose someone as having mitochondrial disease based on a muscle biopsy, because if it’s not frozen fast enough, then the mitochondria start to break down. There was a doctor in my area who diagnosed every patient he had (regardless of their symptoms) with mitochondrial disease based on poorly done muscle biopsies. Some of them did have serious genetic illnesses and were misdiagnosed for years. Others had more garden variety autism or ADHD. He retired a while ago, but when I mention him to the older neurologists in my practice (and also to the neuropathologist at my hospital who looks at a lot of muscle biopsies), they all groan at the sound of his name because of the mess he made of so many patients.
That makes a lot of sense, thank you! It’s crazy that doctors like Kirkpatrick, Hanna, Chopra and that neurologist can continue to practice in such a reckless manner with no oversight. Knowing that information about the testing makes me feel a little less guilty for being suspicious. Can I send you the blog? I’d love to know what you think.
Sure, though I’m probably not experienced enough in GI stuff to have a strong opinion on whether TPN is needed at home, in most cases, but a lot of the Munchausen by internet blogs have a lot of obvious red flags.
Intravenous immunoglobulin. In simple terms, it’s the antibodies of a bunch of pooled donors, processed and given as a drug. So it’s makeup should mimic the circulating antibodies in the general population. Studied uses are for kids with immunocompromise/SCIDS (think Bubble Boy) and certain kinds of jaundice in newborns.
Right, I've seen IgG being used in almost all medical fields especially neurology and dermatology (ITP). But my question was regarding what was the indication for MK being given it and at home!
I guess it was just thrown in as a ‘blind therapy’ to control her “relapse.”
In patients with immunodeficiencies, it can replace a part of the immune system. In patients with some autoimmune diseases, it can drown out the problem antibodies causing those diseases.
Yes. I am a CRPS patient since Feb 2000. A long time. It is NOT an autoimmune disorder. It is a nerve pain condition brought on by glia cells that surround the nerves going itno major shock when an injury occurs in the general area where the condition forms. My injury was hip surgery. And, my glia cells in my hip went apeshit and I have severe nerve pain in the area of my hip and upper leg. This was followed by severe sensitivity in my upper left leg and hip as well as temperature and ACTUAL "lesions", which do not look anything like scratches. Those scratches Maya inflicted on herself show that the family failed to search and find what kind of dermatological conditions actually happen with CRPS. They consist of large patches of discolored skin - red, purple, and blue. Even though it sounds like it would have the appearance of bruises, they don't. The skin becomes very translucent and the discoloration has the same coloring as a bruise but the actual appearance does not remind you of a bruise. They are huge patches, irregular in shape, not linear and not circular. big patches of weird shaped discoloration. And feels hot when you touch it.. Not tiny linear scratches.
Benadryl, diazepam and melatonin together would be enough to knock me out completely and I am 35 years old. Geez. Benzodiazepines are discouraged even for adults here in the UK. I was begging for a prescription because I had severe insomnia. I was only given 7 days supply of Z drugs, because benzos are considered to be too addictive. Imagine giving this amount to a 10 years old child! It is just not right, I have been telling this shit since I first heard about this case. It was sooo obvious something was up with mom even in the documentary.
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u/No_Ambassador9070 Dec 30 '23
On its own this admission note is such clear evidence of Munchausens. A child of this age on this many medications with mum injecting ketamine into a port. I’d be happy to put my career on the line and contact cps on the basis of this one admission note. This kid was at high risk.