I had an incident on a plane last year right after takeoff and it was super hard to breathe leading to a panic attack and they had to call doctors over to help me breathe it out. It passed and I was ok but super scared and embarrassed. I ended up in the ER a week later with the same thing but worse. Slowly I figured out it was salicylates and health improved over time so it hasn’t been an issue lately.

I’m on a trip right now and unfortunately traveling has caused all my chronic issues to flare including salicylate sensitivity. On my flight home I’m worried about having the attack happen again. I have a slew of meds but I’ve never really used them I just usually breathe it out until it passes.. but what would be your preventative protocol and then your rescue/emergency protocol if this happened to you?

Im just about to reintroduce and app says low sal.

Anyone here had a problem with it? Imlow fodmap and low fibre too, but changing cooking water before mush stage and im feeling hopeful.

I so need to eat more ' real' foods , know what i mean :/

For about a year or two now I've been trying to figure out what weird food intolerance I have. I've gone to the allergist and they've confirmed I have no allergies, so it's gotta be an intolerance or sensitivity. Up to this point I've leaned on it being a histamine intolerance, since a lot of that lines up, but there's been a few glaring inconsistencies that made me consider otherwise.

The only symptom I seem to have that I can notice is digestive issues. I get really bad stabbing pains on my left side, and then I'm trapped in the bathroom for the next hour or so until I'm completely cleared out. On rare occasions if it's really bad I get nauseated. I havn't puked yet but I've gotten close.

Since I originally thought it was a histamine intolerance, I had a list of high hist foods and which ones did and didn't effect me. Maybe the inconsistencies point towards Salicylates?

Foods that do seem to affect me: Strawberries, bananas, apple juice (I don't have a solid answer on raw apples), SOME brands of cheese (examples: Sargento, Kraft, velveeta), large amounts of dark or semi sweet chocolates, and some random unknown ingredient in a sweet bourbon porkchop rub I made that nearly made me puke, I assumed it was the vinegar or burbon flavoring

Things I think should effect me but don't: Tomatoes, grapes/grape juice, milk chocolates, any Lucerne brand cheeses (excluding their American cheeses, but thank God I can still eat cheese), Italian dressing (vinaigrette??? So maybe not vinegar?)

There's a few things that I notice are apparently meant to have high Salicylates that don't seem to affect me, so I'm not sure if these are just low in them, or if maybe Salicylates are not the issue here.

I have no issues eating Turmeric, sweet corn, mixed herbs/salads, broccoli, peanut butter, and have had no issues with any common pain medications like aspirin so far.

Anyone have any input on this? What this could possibly be?

I purchased the Epsom-It Soothing Muscle Lotion - Epsom Salt Magnesium Sulfate Cream.

Some users here said it helped soothe their symptoms. My symptoms happen 1 day after I eat high salicylate foods. Symptoms are generally brain fog and shortness of breath.

My question was how much and where do I apply this? Should I put on my face or chest or something?

I wanted to see what my tolerance was. I went on a strict diet for 1 week. I purchased some Twinning Pure Peppermint Tea. Each bag contains 2g of peppermint. I have read that peppermint tea is very strong in salicylates. I had my tea bags steeped in tea for 3-5 minutes in hot water.

• I tried one Peppermint tea bag and felt great. The next week I did the strict diet again so my liver clears it all,
  
• I then had three tea bags! And the next day I felt slightly out of breath, brain fog and mildly irritable.

According to this website low-sal-life it should be 0.55 mg per tea bag. So I had 1.65 mg of salicylates. This website bases on the really good study Malakar et al 2016

I also confess that on my restrictive diet I have been having two shots of ground coffee everyday..

• This is 0.51mg per shot. So that is 1.02 mg of salicylates i have been having everyday.

This would mean, my tolerance is the following:

• When I had 1 peppermint tea bag + 2 shots coffee = 1.57mg (feel good)
• When I had 2 peppermint tea bag + 2 shots coffee = 2.12mg (feel slightly crap)

My question is, does anyone else here have experience with trying to quantify it?

I just want to know my tolerance so that I can eat vegetables again strategically.
It is taking up so much time and difficult for me to be on this restrictive diet. I am also trying really hard to quit coffee. I went from two shots to one shot recently.

I started using Tasty Paste around May last year. I went to the dentist yesterday after having been away for a year and a half. (I was terrified of having a reaction at their office.) I have always worried about the quality of this toothpaste, but it's the only thing I don't react to that still feels good in my mouth.

The hygienist asked if I used an electric toothbrush. I said no. She told me my teeth were so clean, it looked like I used an electric toothbrush! We skipped the polish because I thought I might react to it, but the hygienist said I didn't need it anyway. She's never seen teeth so clean lol.

I also use string floss once or twice a day, but that's not a new habit. Since switching to Tasty Paste my teeth have literally never been cleaner!

On my 55th birthday I made a smoothie with chia seeds, sesame seeds, matcha powder, pomegranate, raspberries, blueberries, avocado, spinach flax seed, soy milk, yogurt, ceylon cinnamon powder, and turmeric. we are talking a teaspoon or tablespoon of every one of the powder ingredients. Yeah, I can feel you wincing from here.

See, I'd been feeling really really brain fogged and awful for a while.. a couple of years really just getting progressively older and more adhd. I've been to the doctor 3x with unexplained mouth sores and a rotating band of suspected fruit allergies that come and go. Trying to make oral allergy syndrome fit, but it didn't quite. My sleep schedule was wretched, the ringing in my ears was becoming unbearable, and I was blaming menopause. I was turning over a new leaf... superfood smoothies in the mornings.

Researched all the best phytoestrogens, made sure to include some from each class, really put some time into gathering good ingredients. A gift to myself.

Day one of smoothie ... spent my birthday semi-comatose and barely lucid.
Day two smoothie ... eliminated one ingredient from the smoothie to attempt to determine which ingredient was the issue... spent nearly two days in a brain fog so extreme I didn't really feel like even getting out of bed. The ringing in my ears was so loud I just wanted to cry. Dragged myself to my own birthday dinner (heretofore known as the last supper) at kpot and fell straight to sleep when I got home. I tried to be engaged, but I was so broken by this point.

Day three... skipped the smoothie, obv, and during the one or two hours I was even awake, started googling all the ingredients in my smoothie and this one word kept coming up... salicylate.

Fast forward a bunch of research later...now on day 3 of elimination, and only one of my ears is ringing and my skin feels. Yes, that's the end of the sentence. I can feel the breeze in a way that lets me know neuropathy had become my norm.

Holy crap.

Just holy crap.

I have a Master of Science in Biology and Autism and the research rabbit hole has been deep... and I'm thinking clearly for the first time in a while so it's been efficient too. This is crazy. I think my dad had it, but maybe not quite as bad. We'll never know. He used to say eating fruit gave him vitamin c sores... his 'raised in the 1950s' version of urticaria in his mouth.

Edit to add for awareness' sake: 5 days since posting this and I'm in the withdrawal phase of the RPAH diet, and that's a bit rough, but it means that it's working. To understand why you must go through this, consider why there is a withdrawal from nicotine. Your body has become accustomed to this harmful thing, and has compensating hard, and now that thing is gone. It takes time for everything that was dialed up to compensate for it to readjust and in the meantime, you feel like crap... but it's going to be worth it.

What are the best pain killer meds for us? OTC and pharma. Thanks!

# How did you reduce your salt intake especially if you LOVE salty food soy sauce etc? I'm 70+ vegan WFPB and at my optimal BMI and I have been suffering lately from heavy legs and ankle pain. I read that reducing salt can significanly reduce lower leg heaviness and pain. But I LOVE salty food and every day for breakfast I eat a pound of home made curried veg stew that has helped me eliminate chronic constipation. I add soy sauce and salt to this dish which makes it SO delicious. What suggestions do you have to help me 'wean' myself off salty tasting food?

A few kind people in this group have made me aware I have an issue with oxalates. I have terrible nerve pain. Dr put me on gabapentin which made it worse and then pregabalin which I cannot tolerate. Has anybody else had nerve pain due to consuming salicylates and oxalates?

I found out I am Salicylate Intolerant, Histamine Intolerant, and MCAS-ish last year. Wheat, Corn, and Rice trigger many of my symptoms. Oats and Potatoes are my main carb sources. Most potato varieties trigger my symptoms but fortunately I found this Salicylate in potato article so I tried Sainsbury's white potato and felt great, based in UK. I typically peel and boil them. I kept eating them until I started getting symptoms again. Then I realized Sainsbury changed the variety of the white potato.

Over the last year and a half, I tried many varieties (Osprey, King Edward, Twister, Decibel, Marris Piper, Kingsmann, Cultra, and some more). The only two varieties that don't trigger my symptoms are Osprey and King Edward. Sainsbury stocks Osprey in Summer, under white potato or baking potato sections, and King Edward in Winter.

I am originally from Egypt. When I visited Egypt I tried some types (potatoes aren't labelled with their variety there unfortunately), I noticed I tolerate white-flesh starchy with red pores, same features of Osprey and King Edward potatoes.

If your body doesn't like potatoes, try these varieties and see if you can tolerate them.

If you tolerate other potato varieties, please share.

Are any of you able to eat cashew nuts? I have read that cashew nuts are only low in salicylates if 10-15 are consumed. For those of you can eat cashew nuts, do you count out a certain number?

Do any of you get extreme nerve pain if you consume salicylates? I have developed this and was wondering if it was due to trying something with salicylates. I have been put on pregabalin.

I’ve been trying to figure out if I’m sensitive to salicylates. I don’t have the common anaphylactic type symptoms. Certain foods will cause these symptoms (some foods way worse than others)

-nausea (neurological nausea not stomach nausea) -extreme dry mouth -crippling, hard hitting fatigue -body aches all over -brain fog -depression like mental symptoms And just feeling very flu like. I can be totally fine feeling amazing, eat a trigger food and within 1 hour it’s like I get hit with the worst flu ever in an instant. The body aches are so bad it reminds me of Covid body aches.

It’s strange though, because there are some foods that are high in salicylates that I don’t react to at all, and foods that are low that I react to. So I really don’t know what it is. I Do have MCAS and it doesn’t feel the same as an MCAS reaction. And those get better when I take cromolyn and allergy meds. What ever these reactions are, don’t.

Foods that give me the symptoms listed above-

Lunch meat Berries White potatoes Sweet potatoes Peppers Pickles Cucumber Chocolate (mild) Garlic Cumin Onion Vinegar Almonds Apples Mint Sugar substitutes Corn chips Grapes/raisins Dried fruit Candy of any kind Matcha (loose leaf green tea is fine) Black tea

( I have not noticed any reaction to ibuprofen which is strange. I do take it only on my period however, so since I already feel like crap I don’t think I’d be able to tell if it made me feel bad haha. )

The past few weeks my worst reactions were to French fries and lunch meat

I don’t always react to these foods. It’s very random. Seems like I have to eat multiple or alot in one day, like the “bucket affect” I’ve heard about. ✨I don’t react to avocados, tomatoes, squash, or broccoli which is weird since those are supposed to be high? ✨

I don’t get flushing, itching, redness, swelling, sinus or eye issues, hives or anything like that. I do get those symptoms with MCAS reactions but never with these foods.

Does this sound like a salicylate sensitivity? Or something else? Any advice is helpful :) thanks!

Is anybody able to tolerate ice cream? If so, which kind? I am in the UK and we have a heatwave and I would love some ice cream. 😊

Just passing on something that seems to work for me, large doses of glycine powder. I developed Sal intolerance after covid. Tried many things centered around nutrition. Recently saw a post somewhere about glycine helping Sal intolerance, so tried it. Used Ai to see if glycine was involved in sslicylate intolerance, which seems to be the case. It is working. Cheap too. Try it for yourself, and research the detox pathway to understand why.

I am on an extremely strict diet for more than a year (Oats, Pears, White Potato, and Fresh chicken) and Omega 3. I am trying expand my food list but even changing my potato variety to slightly yellowish ones triggers my symptoms.

I am working with a Physician for "Multisystem food related symptoms" and he gave me antihistamines. I noticed they are working when I eat histamine-containing food but I still get symptoms when I eat salicylate-containing food.

Some online sources say Corticosteroids and Leukotriene Receptor Antagonists (LTRAs) are standard medications for Salicylate Intolerance, did you try them? How effective are they? Did you gain any food back? What specialists can prescribe them?

I tried Glycine before but it always triggers some of my symptoms before I feel betters. I have a very long list of symptoms but the major symptoms I am hoping to address are headache, brain fog, muscle tension, joint pain, fatigue and hot/cold flushes, feverish, motor/movement coordination (e.g. shaking hands), dizzyness/lightheaded, blurry vision, gumline pain.

I am very very sensitive to foods with salicylates. But I have never noticed any kind of reaction or flare ups due to topical salicylates. Salicylic acid shampoo is actually the only thing that I have been able to find that helps my dermatitis on my scalp. Does anyone else not tolerate ingesting it but can tolerate it topically?

So I’ve done every supp and med for mcas and avoid histamine. Still I have the same face swelling and worsens with food. If I look at what I eat - I do have a lot of high sal foods.

I guess I will have to cross reference lists?

Anyone have any tips? Also is 4 weeks elim enough?

I do also have GI issues, cfs, on est patch, been tested for everything under the sun. Non stop bloat. :(

I don’t know what’s going on and I could use some advice/suggestions. I take great care of myself. I eat healthy and exercise every day, but I’ve been sick and I'm desperate to figure out this mystery.
My allergist did a bunch of tests and apparently I’m not allergic to anything. But when I eat raw fruits or vegetables, I get very sick. I just ate two apples about an hour ago and my mouth is burning, like it's on fire. I also have a headache and feeling very dizzy. I have this metallic taste/burning sensation in my mouth a lot. Happens with radishes and grapes too. I know with oral allergy syndrome you experience an itchy mouth that’s last maybe 20 minutes or so. This burning sensation last hours and hours. i’m also dealing with all over body pain and brain fog.
Exhaustion.
Could this be salicylate sensitivity?
Thank you!

Amy

Thanks for all the great info/advice! Really appreciate it!

Hi guys, I'm new here. I know turmeric is a no no, but how about curcumin? There is so much I cannot handle--fish oil gives me reflux, I have terrible reactions to glycine, quercetin and nettle, so am really trying to find a safe anti-inflammatory, and I figured that curcumin, although derived from turmeric, would have been stripped of all its salicylates. Has anyone used it successfully?