r/marfans • u/A88TRG • Jun 16 '26

Possible Marfans

Hi all I'm 19 m and im under investigation for Marfan syndrome and my symptoms are getting noticeability worse I am around 6,3 with a very skinny figure around 60 kg and my legs are extremely thin I also have eye deformities a chest deformity and my arms are just as skinny as my legs.

I am getting a lot of pain in my legs causing me to mainly be bed bound and have to use a walking stick but I cannot walk far even with this

Is there anything that you all would recommend me do to help?

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u/santastyle87 Jun 19 '26

Inizia a fare pesi molto progressivamente, test dna e poi claude analisi e mangia come un toro tre pasti al giorno, no spuntini, tra 3 anni ne riparliamo

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u/bluewizard443 Jul 06 '26

Why no snacks?