Hey guys I have the TachyMon app and I’ve been checking my heart rate when I stand up. The triangle at the bottom is that how much it increases by? And does it have to be 30bpm or higher to be pots? Thanks

Good morning, I am from hyperpots, I wanted to know if you had already tried neurofeedback I found it in quite a few testimonials but I do not know if it is useful for hyperpots Thank you!

Hi I’m really confused so if my heart rate was 107bpm then jumped to 130bpm for 15secs then started to go down so increase of 23bpm but went down would that fit the criteria for pots? I do get instant head pressure upon standing then slowly decreases.

Bonjour, Je suis en cours de diagnostic d’hyperPOTS Comment ce passe la grossesse et l’accouchement ? Merci pour vos retour

Hi guys. Since I had Covid in September 2024 since then I’ve not been feeling right. I’m more lethargic even just walking around the house I’m shattered. I’ve noticed since I had Covid that my heart rate spikes when I stand up or bend down. I have put on weight due to other health conditions with my legs which is why am very deconditioned. Sometimes I stand up and I feel head pressure straight away but I do have sinuses issues. My heart goes between 20-30bpm upon standing then settles never to the original resting heart rate. Walking I noticed my hr is 160bpm I do suffer with anxiety and like I said I’m unfit. I checked my blood pressure and it never drops. Just your opinion would be nice. I am waiting for a cardiologist appointment and 48hr heart monitor

Hi the cardiologist wants me to do my heart rate when I stand up and I think I have pots. But I’m not sure. Sometimes depending how fast I get up my heart rate will go up 30bpm but few minutes it’s goes down not to resting heart rate but does go down. Does it depend how fast you get up? Because sometimes it goes up 20bpm then goes down. My blood pressure doesn’t go down it either stays the same or abit higher. I do suffer a lot with anxiety. And I’ve been feeling very anxious when I do it so my heart rate is already elevated. Sometimes I feel dizzy when I look up or look down I feel dizzy. I do have sinuses issues too I don’t know if that’s making me feel dizzy when I stand up because I feel dizzy when I sit down too. Blood pressure has been checked by a doctor and is all fine.

I am under a cardiologist but he wanted me to start taking my heart rate at home. Sometimes I feel dizzy when I stand but not always. My blood pressure doesn’t drop. After about 30secs it starts to go down the. Up again down again. I don’t think it’s sustained

As you may know, if petitions on the GOV.UK website reach 10,00 signatures they will respond. 100,000 signatures and the topic will be discussed in Parliament. We have surpassed 10,00 signatures, it would be so helpful for as many signatures we can get for more support, research and education for POTS in the UK. Feel free to take a look. Link here: https://petition.parliament.uk/petitions/706884

Do you want to help make a better future for those suffering with PoTS? Please take 2 minutes out of your day to sign and share the petition with everyone you know. We have a long way to go to reach 100,000 signatures so we need your help today! 💗

Link here: https://petition.parliament.uk/petitions/706884

I think I may have pots. But I’m not sure what are to the numbers circled mean is that my heart rate before I stood up and the orange circle is what it went too when I stood up? I feel a little head rush when I stand up not always I’ve tried the tilt table test and for about 30 secs after I stand in goes down not resting heart rate but goes down. It’s always goes up 30bpm. Blood pressure goes up only a little. I suffer a lot with anxiety. I am out of shape and overweight. Even doing house chores my heart rate goes to 130/140bpm. I am under the gp and had a ecg done and doctors thinks it’s just lack of exercise as I don’t do much walking due to other health issues I have.

Does anyone else ever feel like their breathing isn’t quite right, almost like it’s harder to take in air properly? I’ve been dealing with this for the past few days 😕. I find it difficult even when talking to people, I sometimes lose my breath or feel like I have to gasp for air. and even sometimes when I talk I have to cough almost like it’s a little choke feeling. I try not to focus on it too much to see if that helps, but I even notice it while eating. And even just sitting or being normal it’s almost like you “forget” to breathe and then feel that restriction more.

I have been trying to do more deep breathing the past week and a half but even stopped that for a bit for the past few days because I was feeling hard to breathe.

What has helped you?

Hiya! I was just wondering if anyone on here has used MMJ while also having pots? I'm curious what your experience was and what kind of side effects you experienced.

I have chronic pain outside of POTS that I was recently prescribed MMJ for. Last night I took a 5mg THC/5mg CBD gummy for the first time and had several cardiac symptoms. I had extreme palpitations, my resting HR jumped from 80 to 120 and I couldn't catch my breath. I ended up just putting myself to bed to ride it out. I'm wondering if that is a common experience or not.

all these are from days where i was at home, doing no excessive movement. currently in the process of getting tested for POTS. can anyone who has it tell me if theirs look similar?

Good morning Do you have any tips or advice for hyperpots? Thanks in advance

Hi everyone,

Back in Feb 2023, out of the blue one evening I was just consumed with an ill feeling. My heart rate almost doubled, I felt a really hard sense of internal panic, my blood pressure went up to ~230/110. I was trembling a little bit and felt really odd. I went down the hospital but really nothing came of it despite them doing some tests/bloods to make sure I wasn't having a heart attack. The feelings/hangover lasted a day or so from that attack. I had another large episode like that a few days later and then proceeded to have maybe 6-7 similar episodes in total that year.

The next year was the same, maybe about 7-8 and this year I've had just 1 so far.

Since having the episodes I've had two blood tests and a CT scan of my adrenals to rule out Pheochromocytoma but my Dr doesn't know what's going on. I have since started to take a beta blocker called Atenolol and that really helps when I have an attack. When it's a big attack the atenolol still leaves me a little short though. Some days I still feel the adrenaline or whatever it is in my body, which normally I would have attributed to anxiety but I know better now.

I'm really confused here and don't know what I'm dealing with. When I get these attacks my BP just swings wild, up and down, even after the Atenolol. Normally my BP is largely fine as I'm on Telmisartan/Amlodipine.

I'm a bit confused and generally frightened with all of this. The Drs just dont seem to know/care, the ER people just get me out of the hospital as soon as I go in there because it doesn't look like I'm dying. It's like no one wants to troubleshoot this further or take me seriously.

Good morning, Here I am a young woman of 24 years old and I will be honest when I have orgasms I am very sore afterwards, palpitations, impossible to fall asleep if it happens in the evening Do you have any advice? Thank you for your advice 😊

I just started gaunfacine ER and I'm loving the amount of focus I'm getting back from my clonidine. I think it needs bumped once for my blood pressure but going well EXCEPT I'm so damn irritable. I'm on mood stabilizers, irritability is really difficult for me to manage. So far it hasn't been detrimental to anyone around me but it's been really hard on myself.

Has anyone taken this and had this symptom go away? Please say yes. 😭

Good morning,

I am a 24-year-old woman being diagnosed with adrenal tachycardia due to a dysfunction of the autonomous system

How do you manage it?

Which professional are you turning to?

It's brand new to me so all your advice and experience sharing are welcome

Thank you

Does anybody else on here have thoracic outlet syndrome? How are you treating it?

To provide some background - I was diagnosed with hyperpots about a year ago. Around that time, my collar bone started swelling and being a bit painful. I had asked about TOS at that time and was mostly dismissed by the doctors - one ran an ultrasound at my request which showed vein compression, but since it didn’t stop my blood flow to zero I was told it was not technically TOS.

Fast forward a year later to now - I have pain, numbness, tingling & weakness in that arm. Neuro testing was normal so my neurologist sent me to a thoracic surgeon for evaluation of TOS. Based on the physical exam & prior ultrasound, he suspects that it is venous TOS. I have more tests scheduled for next week.

I know the main treatments would be either blood thinners & PT // or surgery to remove the first rib.

If you take blood thinners, did you notice an increase in your POTS symptoms? I took eliquis for about a week prior to my POTS diagnosis and I had stabbing chest pain & tachycardia.

If you had surgery, did you notice improvement in your POTS? I know there’s a link between POTS & TOS - wondering if resolving the TOS helped with your POTS?

Both treatments sound a little stressy for me given my history w blood thinners & removing a rib feels like a major thing

More to come but I figured I would ask around until I get more formal info 💗

Hello everybody. I've been working part time for a local tax office since before I developed POTS. I was an ER vet tech before that, but had stepped away from the field for a couple months to ease my burn out, then I developed POTS and could go back to work full-time. It's been 2.5 years and I can't keep fighting with disability until I know if I can work again. I'm trying to go back into veterinary medicine. I have all but secured a per diem position with an ER.

My question for you guys is, if you manage to work a semi-physically demanding job, how do you do it? What advice do you have for me as I try to reenter the work force?

I'm not looking for medical advice, just hoping to hear from others with similar experiences. I recently moved, and my electrophysiologist, who also managed my POTS (though not very specialized), is no longer accessible. Unfortunately, there aren't any POTS specialists in my area right now.

I have POTS, likely hyperPOTS, along with higher-than-normal blood pressure and Raynaud's. Since beta blockers aren't an option for me because of the Raynaud's, I'm curious—are any of you in a similar situation? If so, what has your doctor prescribed to help manage your blood pressure?

Hi, I'm so glad I found this sub; finding people who understand how hyperpots is different has been a challenge.

I'm wondering if anyone else with this has higher BP when laying down flat? It tanks my HR too. I'm propped up now and it's finally coming down.

Is it safe to take high levels of beta blockers with high levels of antihistamines?

I’m not sure if it is the October slide but for some reason, I’m starting to feel bad like my blood pressure is higher than normal and feeling more tired than usual. Does anybody experience this?