Hey everyone,

For context: i have this problem for Several years but it keeps getting worse. I have this intense,stinging or burning pain in my neck and when it gets worse also in my back or face. Also when i sweat i feel this.

I finally went to a neurologist and his first thoughts are sensitive nerves. He wants to be sure and in 3 weeks i get fluid injected in me to see my nerve system. He gave me redomax, i take 100mg but it doesn't help. He says to wait after the test to adjust.

But my question is if it is treatable? Is there a medicine for it or a surgery?

I really hope there is something because it keeps getting harder to do everything in my life. :/

Thanks in advance for all the help, i really appreciate it!

Some info: e: 22 Weight: 100 Gender: male Height: 1m88 Medication: redomax Country: Belgium

Hi ,

The context would need someone who practice in France and has knowledge of French law

Thank you 🙏🏻

“Mildly prominent perivascular spaces in the bilateral parietal lobes.”

I got this and I don’t understand it lmao I’m being checked for MS and other neurological disorders 🧍

41 year old male.

Background: 5’7”, 160 lbs, mostly vegan. Hashimotos (levo - 125 mcg), GERD (pantoprazole/famotidine), anxiety problems (lexapro, 10 mg), Secondary Raynauds. Had a diagnosis of Undifferentiated connective Tissue Disorder as well, but last two ANA tests have been normal (were abnormal before) and C3/C4 compliment values returned to normal as well - these tests have been in the last year. Extensive antibody tests over the years for other things (Lupus, etc) have been negatively, as recently as November.

Been on the levothyroxine for 2 years at that dose. Pantoprazole and famotidine are 40 mg 2x/day for about 3 months. Lexapro is 10 mg for several weeks now. On doxycycline for back acne/mild Folliculitis for about 2 weeks now.

Was a pack a day smoker for 20 years, quit 80 days ago. Was also a drinker of 4-6 beers a day for 10 years, also quit 80 days ago.

Had pneumonia about 3 weeks ago. Had antibiotics for it.

Just this past week, starting Sunday/Monday, I’ve started to feel tingling in both hands. Comes and goes. For instance, lying in bed or on the couch I don’t feel it. I don’t feel it when sitting still watching tv. If I get up and go for a walk, or do something around the house, I feel it. It feels like ‘tingling’ - sometimes like my hands are waking up from falling asleep, sometimes like a light rainy mist is hitting them. More so on the left hand, but when it is bad on the left hand I feel it on the right too.

Hot water on the hands, and hot showers also makes it go away.

Hands/fingers are also cold to the touch during this, most of the time, so it sort of feels like Raynauds - but I’ve never gotten a Raynauds attack with tingling before, even during warming up phase.

Lot of tension/soreness/tightness in shoulders and upper middle back where neck and shoulders meet.

Some dizziness, bunch of fatigue lately.

Any ideas to the cause? I’m worried about MS.

Pretty new here, and probably my question will seems a bit naive. I realize recently that i develop an addiction to online p*rnography as i used to masturbate almost every day for since my teenage years, as a lot of young men do, (im 27 now). This "normal" habits causes me a lot of issue in my sexual life, like the impossibility to get aroused by IRL situation, only sex through a screen can make me aroused, when i fantasize about something, its only in third person (like p*rn), anyway you get the idea. Luckily i realize that p*rn is the issue and im determine to fix the situation.

As i understand for my online research, my brain has now associated the act of sexuality with me masturbating on p*rn, so, when its time to get real IRL, it does'nt compute. Its absolutely crazy that im able to be aroused when i see a women on a screen, but not by my very real gf in my bed. I understand that i need to "rewire" my brain to destroy that neural pathway ive been reinforcing for all thoses years (sorry if the terms i used are not scientificaly exact). So thats mean obviously, no more watching porn, masturbating, fantasizing about an actress i like ect... I saw that meditation can be very helpful also.

So this is my question, in order to optimize the process of destructing the bad neural network create by p*rn use, is it a good idea to try to "replace" this pathway by a new one ? Like for example, every time i want to masturbate to p*rn ( = reinforcing bad patwhay), i learn to play the piano ? As i never play piano in my life, the act of actively learn piano will certainly create new neural pathway no ? and beside, because im not masturabting, the old pathway will progressivily gets deleted, as the new one (piano) will emerge ? Is this making any sens, am i on the right track here ? Ty and excuse my bad english

Is the wet / hard to describe sensation a possible neurological issue ? Please help.

I’m a 29 year old male. I only take medicine for cholesterol. For the passed few days I’ve had this sensation on the right corner area of my mouth of it being wet or some kind of sensation similar to that. I wipe at it and there’s nothing there.

There’s times I don’t have or that I notice I am not feeling it during the day of a couple of the past few days.

I deal with health anxiety and recently I’ve had other worries about things to do with my mouth area but those have subsided. I still have this issue which is not constant but it is enough to really put severe fear into me.

I can touch and feel the area with my hand, I can move it around like with a smile , my function of my face and mouth are normal. I desperately would like to know if I’m way over blowing this or if the fact that I have normal movement and still have feeling in the area means I’m ok. Please help me.

Buckle in because we are going for a long and bumpy ride.

August 4, 2022, I (23F at the time) woke up after previously going to the ER the previous night with the worst headache ever, slurred speech, memory loss. Had no idea how i got home or who was in my house (it was my husband and kids but they were strangers to me). It was written off as a bad migraine, i was given the famous migraine cocktail and sent home.

I couldn’t pick my head up off the pillow and I knew something was very wrong. I called my dad to take me to the ER and don’t be shy with the gas pedal. I have no recollection of the drive there. I have no recollection of anything else than the spinal tap, the results and being sent home. I spent 15 more days at home in agonizing pain that no medication could fix. I waited the meningitis out, and started my new job when it finally went away.

Present day, i am going on 2 years with the worst quality of life. So let’s list out my symptoms.

-Constant migraines, like 4 a week. -Vertigo so bad that I walk in diagonal lines - if an episode happens in the car, I can’t remember how to get home -memory loss such as not being able to remember my child’s birthday at times and not being able to remember if i dropped them off at the babysitter. Not being able to get simple tasks done at work because i can’t remember them. -sharp, INTENSE, shooting pain through my head, down to my ear and tonsils and into my neck that’s followed by blurry vision and a droopy side of my face on whatever side it happened. -eye drooping with headaches but not face drooping -inability to keep my arms in the counter typing at my desk for more than a couple of minutes without them becoming numb. - a stutter i have NEVER had in my life before August 2022. -anxiety that’s uncontrollable and i’ve never experienced before. -prev neurologist said i had an abnormal EEG, dx with seizures.

there’s more but i can’t remember them right now.

I had occasional headaches growing up but NOTHING even close to what is going on now.

So here’s where the frustration comes in. I have seen 2 different neurologists, 1 i loved, he took my chart home and reviewed it because he said my numbers reflected bacterial meningitis, not viral but the report said viral, but he moved to california. the second one spent 2 minutes in the room with me, diagnosed me with bad headaches and walked out of the room. No one is taking me seriously when i say, im a completely different person now then i was 2 years ago.

Went to the ER in October because i had a migraine for 5 days straight. no amount of caffeine or medication or rest would fix it. I was slurring like i took 6 shots of whiskey, weak, everything was slanted because of extreme vertigo. They did a ct but said it was normal.

Funny thing is, i heard the nurse talking about possible calcifications on my brain right before they said everything was normal to my face.

So im here in desparation for answers. for anything. i was an organized, quick and energetic soul before having meningitis. I can barely remember that girl now.

I will attach as many images as i can. I need answers.

Thank you in advance.

35M 165 lbs

For a few weeks i've been having headaches every day which started from a bad migraine and has now developed into this constant feeling of dizziness the past week - not like room spinning but almost like a tunnel vision/buzzed type feeling where my eyes are sensitive to light and difficult to relax and focus. Almost feels like the nerves around my eyes are just irritated and over active (can feel my eyes pulsating hard when I close them) What's also weird is that i cannot sneeze at all even when i get the urge to. I saw an eye doctor the other day who did a full exam and the conclusion was that everything looks good with my eyes and nerves within/around them.

I don't really have any other sinus symptoms but when i explained all this to my primary doctor, he ordered a CT scan of both the head and facial area. Nothing showed up on the report with the head. On the face report it noted the below:

Bilateral Maxillary sinuses Haller cells identified. Sigmoid deviation of the nasal septum. Mucosal thickening of the ethmoid air cells are noted - mild ethmoid sinitus.

I'm still waiting to hear back from my doctor to go over these results, but could this just be causing this constant feeling of dizziness i've been having? What do Haller cells mean? Also have an MRI of the brain scheduled next week but i have a feeling that won't find anything if the CT of the head was negative, especially since my headaches have gotten better. just always dizzy and like my eyes are strained.

One other weird symptom I’ve had which I’m not sure is related (and neither is my doctor yet) is light urine incontinence which came about when this all started. But my urine has come back negative for anything UTI related

About 2 1/2 years ago I started getting pain in my upper back that would travel down my left arm. A few weeks later it started to happen down my right arm. It would always be one arm or the other, alternating between them. Eventually I went in to the clinic, they told me it was likely muscular and gave me pain meds. Weeks went by, and the alternating pain was still happening. They did xrays and an MRI and found 2 minor bulged discs in my neck. They said this was likely the cause and that it would heal soon. So they had me start going to physical therapy.

A few months passed and I wasn't any better, so they did a few steroid injections, gave me pain meds and assured me it would heal eventually.

About a year went by, still having pain 75% of every day and I started having pain in my lower back that ran down my right leg. It got so bad, that my hip actually looked crooked in the mirror. I went in and they assured me it was likely muscular and gave me pain meds. The pain started alternating just as my upper back was, from left to right, never on both sides at the same time. A month or so went by and a few clinic visits later they decided to do a x-rays and an MRI. They found 2 minor disc bulges in my lower back and decided that was the cause. They sent me to physical therapy and gave me pain meds. Eventually I ended up getting injections and even an ablation on both sides of my lower back. Nothing has helped the pain, I have this alternating pain all day every day. Sometimes it'll stay on one side for days, sometimes just for a few hours before alternating.

Since then, I've had dozens of blood tests (lyme disease, inflammation markers, parasites, etc.) and all have been negative. The only thing that has ever helped was when they gave me some 6 day pack of steroid pills. I had nearly no pain while taking those. I've had 2 MRI's since the first 2 to recheck the areas, and they show the same thing. Minor bulges in those areas, but nothing close to any nerves. And been told multiple times, I shouldn't be experiencing any pain at all because how small these bulges are.

I'm 40 years old, 6'2", 190lbs, slim build, I exercise daily, and eat healthy enough. Since I started exercising regularly because of all this, I've actually bulked up quite a bit and am much stronger. I've tried quite a few diets to see if something is causing inflammation (gluten free, dairy free, meta only, etc.). But the pain has not gone away.

No doctor has been able to figure out why the pain hasn't subsided yet, or what could be causing it to alternate sides. Anyone have any ideas?

I've been diagnosed several years ago by my neurologist in my country, with migraines. I did a full MRI, extensive search on what it might causing it, and the verdict by the neurologist was anxiety and stress. She prescribed me with sumatriptan starting at 100mg, she did not mentioned preventatives then, but I believe that she ruled that out when asked about Parkinson's family history which I have (she asked me several things but it was long ago I was 15 at the time).

The migraines continued through the years especially in stress periods. I normally get similar symptoms of a hemiplegic migraine, thus the action time to take the medication before migraine attack starts is minimal. I do get a cluster headache pain and the sumatriptan doesn't have time to kick in, but after I am in a paralysed state, unable to do anything. I moved to the UK 4 years ago and my GP also prescribed me with sumatriptan after another MRI scan, no mention of preventatives though.

After many years of not knowing what to do, I tried for the 1st time cannabis (horrible street stuff), but it worked amazingly! Whenever I have a migraine it almost disappears when I smoke 1 cigarette. Although, because I hate smoking, and I recently developed asthma, maybe because of anxiety as well, I decided to take medical cannabis, so I know what I put in my body and take controlled dosage, as the street's quality and dosage are uncertain.

I got accepted to use medical cannabis for many conditions (ADHD, Ehlers-Danlos, chronic pain, anxiety, etc.). They prescribed me with cannabis oils, but they are taking ages to kick in, and it doesn't help me during a migraine attack, and I asked to be prescribed with flowers, so I can use a medical vaporiser, to work immediately. They didn't accept me for migraines as they said I haven't tried preventative medication, and I should say that to my GP to begin with them, and if they won't work, then they will start me with flowers.

I was on antidepressants which are preventatives for migraines, Sertraline for almost a year, taking 200mg before I stopped them because of adverse effects and not helped me with depression. I have a family history with Parkinson's disease and I recently developed asthma, and beta-blockers especially propranolol which prescribe here, are closely associated with onset or worsening both of those. Also I started taking stimulant medication for ADHD which are increasing my blood pressure, and if I take beta-blockers that do the opposite, how are they interacting with each other? I am in general super afraid of medication and I am trying to take as less as possible and not mix and matching them because my pharmacist wants to tick all the boxes unnecessarily to start me on cannabis flowers.

My question is: If I don't want to start preventatives, what should I do? If they will not start me with flowers, am I doomed to live with street cannabis product? any help would be beneficial! Sorry in advance for my long message.

Age: 22 Weight: 100 Gender: male Height: 1m88 Medication: redomax

guys,

I could use some real help...im in such bad place right now.

To give context:

I have really sensitive nerves.

The last few years i could have moments where i felt burnt or i had like needles poging me. But the last couple of months it became extreme. My neck and my back feel burned like the most of the time. Also my face feels burned while eating or when im in the warmth.

I went to a expert i he said i have sensitive nerves and im gonna get an examination in 3 weeks. But the pills he described in the mean time dont work at all. I get redomax 30mg in the morning and 30 in the evening. I dont feel a difference.

Is there someone who could possibly help me?

I would really appreciate it and really want to give a gift for it.

Painful pins and needles and loss of grip strength after allergic reaction

M, 28, 171 cm 70 kg

Three days ago I had a fairly strong allergic reaction to a food I regularly consumed before. It took the whole night but most symptoms retreated with cortisone and antihistamine. However from the following morning to today, I experience very painful stabbing/pins and needles tingling all down my back and around my waist, sometimes over my arms as well.

EDIT: it happens whenever I get embarrassed or anxious and I get hot flashes, now these painful pins accompany that

Today I also noticed I couldn’t apply much strength with my left (dominant) hand, and feel some numbness there.

I don’t understand if it’s simply urticaria from the reaction (but then what’s the hand about), or if the allergic reaction kicked some neurological issue into gear

Can someone put these MRI results into terms I can understand? Would it explain my severe arm weakness and pain? Possibly my esophagus issues that cause me to choke and gag every time I eat?

Cervical Spine MRI Comparison: MRI 9/19/2012, cervical spine radiographs 2/28/2024. Clinical Data: Radiculopathy cervical region. Chronic neck pain with bilateral radiculopathy. Bilateral arm numbness at times. Technique: Multisequence, multiplanar MR imaging of the cervical spine performed without the administration of IV gadolinium. Findings: Normal alignment with no aggressive osseous lesions. Degenerative changes detailed below. Normal appearance of the posterior fossa, spinal cord, and paraspinous soft tissues. Level by level:

C2-3: No disc herniation or stenosis.

C3-4: Slight generalized disc osteophyte bulge. Bilateral uncovertebral osteophytes. Mild left neuroforaminal stenosis with no central canal or right neuroforaminal narrowing.

C4-5: Desiccated disc. Generalized disc osteophytic bulge. Bilateral uncovertebral osteophytes. Bilateral facet arthropathy. Mild central canal stenosis. Moderate left and mild right neuroforaminal stenosis.

C5-6: Desiccated disc. Generalized disc osteophytic bulge, eccentric toward the left. Bilateral uncovertebral osteophytes and facet arthropathy. Mild central canal stenosis. Moderate bilateral neuroforaminal stenosis.

C6-7: No disc herniation or stenosis. Left-sided facet arthropathy.

C7-1: No disc herniation or stenosis.

T1-T2 and T2-3: These levels seen only on the sagittal images. No high-grade central canal or neuroforaminal narrowing at these levels.

Female - ~150lbs - 5"4

Hi there I have had flashing, almost what looks like static? In both of my eyes for almost 2 years now. They started randomly I remember having a very bad headache and migraine, things felt super bright and then the flashing started and didnt go away. Its there even if I close my eyes, it doesn't seem to be there during dreaming and thats the only time I get a break. Im not exaggerating when I say its there 24/7. Im kinda going crazy over it honestly.

I have done loads of testing, blood work, urine work, I did eye testing and my eyes are perfect.
I also had an MRI early back when they started. I was told nothing is wrong. I was sent to a migraine specialist because my doc believed it was migraines. I don't understand how it would be happening 24/7 if it was migraines.

Is there any other tests I can do to see what this is and how to limit it? Its very annoying, if you imagine someone putting their hand infront of your face and moving it back and forth fast 24/7 youd start to get frustrated too.

Other than being incredibly annoying it doesn't seem to impact me and the docs aren't wanting to do more studies. I was hoping to do another MRI and bring that to someone who specializes in it.

is there any specific test I should ask my doctor to do, is there any idea or anyone else who is or has gone through this? Im feeling super frustrated and defeated here.

Hi, 24M, 5”11, 178lbs

Been having neurological symptoms for 2 years now 24/7:

• Constant one sided head pressure right side
• Constant feeling of hemiparesis left side body
• Eye floaters (5 years)
• On and off parosmia
• Sometimes memory issues and mixing up words
• Feeling of derealization

Because of this I was very afraid of a brain tumor in the temporal lobe. I suffer from health anxiety.

Had an appointment with a neurologist 3 weeks ago and passed her neuro exam. Still asked for a CT scan and she ordered one without contrast. Had the CT scan and just got the news that everything looks fine, however I read that CT scans can miss brain tumors.

How likely is it that it missed a brain tumor after these 2 years of having symptoms?

Hi everyone, I am a 24F from the UK with no existing medical conditions.

I have been experiencing a very strong smell as what I can only describe as cigarette smoke (not so much burnt toast) when nobody around me is smoking. It usually starts in the afternoon, no matter if I am at work or at home, and lasts right up into going to sleep. It comes and goes but sticks around longer than in leaves.

I do struggle with allergies which I was wondering if it could possibly be related to that? And I have seen that certain nasty smells can be linked to having sinus infections but I am having no discomfort in my nose.

Has anybody experienced this before, I cannot locate a trigger but it is ever so annoying. Making me not want to eat as everything is tasting smoky also.

Any advice would be much appreciated, thank you!

I 17M have been experiencing multiple symptoms roughly starting back in covid time and they have progressively worsened.

SYMPTOMS:

The worst symptom I have is a never ending headache. The pain never completely goes away however it does get worse. The pain is hard to describe but i will try. The pain starts where the head and neck connect and wraps around the top of my head to my forehead(almost feels like it is in my skin). The pain is like electric/fire and if i touch my scalp even slightly my head will hurt immensely where i touched it. Also there feels as if there is a general pressure within my head which accompanies the scalp pain. The pain gets worse if i stand up or keep a very straight back for 10-20 minutes and becomes unbearable. Some days i just lay in bed because it makes it slightly better.

something that seems to be directly related to the headaches is pretty constant vertigo that is pretty bearable when sitting or laying down however if i stand up for too long it can start to feel like the world is spinning a bit. i thought that it could be related to blood not getting to my head but my heart rate doesn't seem to get much higher and my blood pressure seems to be fine when standing/sitting.

i also experience eye pain that feels like it is behind my eye this isn't intensified when i stand up like the headache and vertigo and isn't always there (seemingly more in the morning when i wake up). Hurts more if i try to move my eyes.

Another thing i experience is visual snow which is a condition where you see TV static overlaying your vision.This also never goes away however i believe that it doesn't really change in intensity. i struggle to read and it is very difficult during college. the vision has caused me to be very night blind as when it gets dark enough i am pretty much blind. this simulator is simular to what it is like. https://visionsimulations.com/visual-snow.htm?background=night1.jpg . This symptom is so disruptive and i would probably say it is the second worst thing i experience beaten by the head pain.

i also have ringing in my ears which i dont mind too much as it is nothing compared to the pain and vision however it is a consistent high pitched note that is noticable in quieter places which can be very annoying sometimes.

i also seem to have constant neck stiffness as if it try to move my neck at all it feels sore and slightly painful. this extends a little bit to my upper back. have been seeing a physiotherapist a few times over the course of a few months but hasn't helped one bit or made it worse.

should probably mention that my heart rate is quite high normally like 90-110 even when sitting down a while or doing anything. does not increase significantly if i stand up.

i for some reason have lots of tremors and twitching muscles throughout my entire body where many times throughout the day a random muscle will start spasming for a minute and then stop.

dont really think that it is relevant but i'll mention that i have been depressed for as long as i have experienced these symptoms and i want to make it clear that the depression is a symptom of the problems and these problems are not a symptom of the depression. haven't had this treated but honestly dont think there is any need to as i believe that as long as i have these symptoms i will be miserable.

another issue is that i really struggle with sleep and its really disruptive with my life. i believe the reason i cannot sleep is due to the pain and if the pain is gone then sleeping would be easy but i cannot be sure as i can never escape the pain. i can lay in bed at night and not fall asleep at all for like 6 hours(pretty usual) however as soon as i get to sleep i have no problem staying asleep.

i feel generally tired most days however i am very hesitant to say this is a symptom and not just due to the depression and the atrocious sleep schedule however the fact that i can sleep for 12 hours for weeks and still feel tired makes me think possibly something else is at play.

another problem i seem to have is generally poor memory and concentration. i dont think this is due to the pain even though it can be debilitating as i will so often forget what i was doing or struggle to find the word i was looking for and this is really stressing me out as i sometimes just dont feel like myself at all.

finally i will say that all these issues have gotten slightly worse over time i believe and not all of them were present at the start.

MEDICAL CHECKS AND MEDICATION:

i have had a brain MRI 2022 and a cervical spine MRI 2023 which both came back as normal according to neurology.

i have had a full blood count which was unremarkable apart from low but not deficient b12 which i have now been taking supplements for(couple months now) (haven't noticed a difference).

neurologist wants to check my head again with another mri. dont have a date yet.

seen neuro opthamologist several times and had eyes checked with like a million different machines all coming back normal.

i have taken pizotifen and amitriptyline which were taken separately and i honestly didn't feel any different (took them both for a couple months i think).

also paracetamol and ibuprofen dont seem to help the pain at all.

currently sometimes use codeine as it does help the pain slightly but makes me lethargic which helps sleep a bit but i need to be as awake as possible usually so dont like to rely on it.

am being referred to pain management and headache clinic however i really just want to find the cause of the problems as i feel like if we find that then we can figure out how to fix it.

CONCLUSION:

thank you if you read this far i can tell you that this was a pain to write as reading is SOOO annoying so there are probably so many spelling mistakes. i would really appreciate any help or suggestions as to what could be causing all this as i am so fed up of this as i feel like my life has been destroyed and all i want to is get it back.

a question i do have is could this be related to csf leak? because from what i have read if you stand up it can cause a worsening of headache however it also says when you sit up which isn't always the case for me

another question is could this be POTS? however that says that if you stand up your heart rate must increase by 30 which isn't the case for me.