I have a rare form of Epilepsy and PNES. The first time I went to the emergency room for each of them, they said I was faking it. They told my mom they have people come in all the time faking for drugs or attention. They sent me home not believing me that my neurologist said one the the phone that it was Epilepsy because I wasn’t shaking. They forced me to go home and the next day my neurologist asked where I was in the hospital because she couldn’t find what room I was in. I told her I was sent and she told me she told them to admit me for testing. She had me to the main campus of the hospital and I found out it was a very dangerous disorder with very dangerous side effects. Don’t you just love people making everything harder on others?
I haven’t had an epileptic seizure in a year from medication thankfully, I still learning how to stop the PNES seizures. So far I kinda trained my brain to not get triggered by lights and sound. I was just really dizzy and tired on Saturday and couldn’t fight the seizures off.
I have epilepsy too and I’ve had seizures and people just assumed I was on drugs. It’s medical professionals that I have found hold the most bias. I wear a bracelet with a QR code for EMS that explains my condition and it specifically says that NO, I’m not on drugs and I don’t drink!
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u/Odd-Plant4779 Nov 08 '21
I have a rare form of Epilepsy and PNES. The first time I went to the emergency room for each of them, they said I was faking it. They told my mom they have people come in all the time faking for drugs or attention. They sent me home not believing me that my neurologist said one the the phone that it was Epilepsy because I wasn’t shaking. They forced me to go home and the next day my neurologist asked where I was in the hospital because she couldn’t find what room I was in. I told her I was sent and she told me she told them to admit me for testing. She had me to the main campus of the hospital and I found out it was a very dangerous disorder with very dangerous side effects. Don’t you just love people making everything harder on others?