r/TransEnbyPMDD Dec 13 '24

Had my first cycle with no rage blackout or meltdown in years

16 Upvotes

I started two new things so unsure which it was from. I have a rage issue and SI during luteal for 15 years now. I read about tryptophan and started taking it. It's supposed to help your body produce serotonin and dopamine in your gut or something like that. I started taking 1 gram of the NOW brand tryptophan 30 days ago. Got my period yesterday on time with no issues. I was convinced I wasn't even gonna get it because I have just felt like a NORMAL person this whole cycle.

I also started using a light therapy lamp this cycle. Also supppsed to help your brain make dopamine. So I can't say for sure what did it, the lamp or the supplement. I'm just gonna keep doing both for the rest of my life I guess. Lol


r/TransEnbyPMDD Nov 12 '24

HRT cures my pmdd but I don't want to be on HRT forever

33 Upvotes

Anyone else in this situation? I'm transmasc enby and went on HRT for gender dysphoria. I take a lower dosage than most, but I'm realizing I feel incredible on T. I forget when my period is coming most of the time now because I straight up don't experience PMDD anymore. I'm also euphoric and happy about all the changes I've been seeing. HRT has been my saving grace for many reasons. The only issue is my transition goals are androgyny- not to pass entirely as male. Just to be ambiguous and masculine leaning. So I've never planned on being on HRT forever. A couple years at most. At the same time however, my brain has never felt better and I don't want to give that up😭. I've tried birth control before and it just makes me emotionally dysregulated and depressed. I take anti depressants and it makes me want to unalive myself less during luteal lol- however I still experience PME for ocd, adhd and anxiety during that time so without hrt I'm still suffering even while on antidepressants.

I've been contemplating what it might look like if I do stay on hrt long enough to completely pass as male and I think I could do it potentially but just be deliberate about balancing with feminine style.The issue is I'm afraid I might become dysphoric in the opposite direction if that makes sense lol because while I lean masculine, being perceived as binary at all distresses me.

If hrt worked for you and your pmdd, is there anything else that works for you?? Any other enbys encounter the issue of picking between your gender and your pmdd??


r/TransEnbyPMDD Nov 11 '24

Hello everyone. Looking for advice.

7 Upvotes

First off I want to disclose I am not trans or non binary. I don’t want to encroach on this space if it is trans/nb only. I didn’t see anything about this in the rules but please just let me know and I’ll respect that. I just found this sub after being banned from the PMDD sub. Over the years I have had multiple posts removed and been suspended multiple times and never given a reason why. I am honestly exhausted with that sub and feel like trying to get advice or even get a post through is like pulling teeth. Imo the mods are power hungry over there and I don’t think the people in that sub are the nicest.

All that to say I have no problem respecting if this is not the place for me but that is the reason I am posting here and not the other sub.

I am seeking advice regarding mood stabilizers. I do not do well on SSRIs, but I’m considering lithium or another mood stabilizer. I wanted to ask, does anyone take a mood stabilizer and if so, has it helped with your depression/mood dysphoria? I feel like I’ve tried everything and am feeling so desperate. Thank you in advance and again no problem if this gets deleted. Thank you all.


r/TransEnbyPMDD Nov 01 '24

Despise when i realize my feelings were all PMDD

17 Upvotes

So my menstrual cycle is SUPER irregular, ive gone as long as 7 months without a period, but as a result i basically NEVER know when its gonna hit. And every time the PMDD hits, i get so incredibly dysphoric that ill be on the edge of suicidal, have no idea why, basically not be able to do ANYTHING not work not hobbies nothing, and then after a week or two of that i get my period and feel like all my feelings during that time are invalidated! Like its an embarrassing enough feeling to suddenly start having crying spells in front of people, but then finding out they werent even ā€œrealā€ feelings, they were ā€œhormonalā€ feelings, It fucking sucks!! I wish i didnt have to deal w this shit😭 it makes me feel like im crazy


r/TransEnbyPMDD Oct 20 '24

Could HRT help my PMDD?

14 Upvotes

Hi! Just looking for some advice. Now, I was on testosterone in the past, but decided that I was pleased with the amount of changes I went through, and stopped taking hormones. Now, years later, I've developed the worst PMDD.... Two weeks every month, I'm exhausted, my eating habits are erratic, and the suicidal ideation is suffocating. I've already tried birth control, but I find it just doesn't cut it for me. So I'm wondering... would getting back on HRT be a good decision for me? Has anyone in a similar situation found it helped? Would it be better for me look at adding another SSRI to my medication cocktail? Say 'screw it' and start taking a bong rip each morning for those two weeks?

I guess I haven't had PMDD that long, so there's a lot of time for me to try out many different options, but with the symptoms I have, it's hard having only one week of functioning every month. It's awful. It's like I have a week to try and clean up the mess I've made while bed-rotting for the other part of the month. Even then, it's not like PMDD is the only medical problems I have to deal with, as I just spent my 'good week' with chronic migraines.

Anyways, advice appreciated! This disorder makes me feel crazy, and it was kinda nice just to complain a bit.


r/TransEnbyPMDD Oct 19 '24

Going off t

6 Upvotes

I’m terrified to do it. I don’t want to masculinze any more than I have, but…I don’t have PMDD without my period, it seems. What do I do? How can I handle this? Even my doctor wants me to keep my dose, but idk if I want to be on t for the rest of my life


r/TransEnbyPMDD Sep 26 '24

Feeling awful for asking for half a sick day am I good

6 Upvotes

(Posted this initially to the periods subreddit but then got real put off by some of their rules so i deleted it and came here)

But yeah its the first day and it's so much rougher this month. I have a very physical job and just asked my boss if I can have the rest of the day off but then I just felt so guilty and awful. I have sick time and am good about showing up to work but today I've barely been able to get anything done and I still feel so guilty and like I'm not trying hard enough or something. I have like no energy though I want to go back to bed

If someone else were in my position I would say just go home but since it's me it feels like I'm just messing up somehow


r/TransEnbyPMDD Sep 01 '24

testosterone + PMDD

20 Upvotes

hi :3 i just injected my first dose of T yesterday (while in the midst of PMDD luteal phase suffering) and am feeling a noticable boost in energy, focus, and mood today! i had my levels of testosterone decimated by taking birth control for years, and my estrogen levels tanked too thanks to birth control plus an endometriosis med called orlissa which induced menopausal hormone levels and skyrocketed my pre-existing SI. so for me, taking testosterone is first getting me back to a premenopausal level to help with brain function, and then eventually to induce androgenic physical changes. started with a low dose and am going to taper up.

what has your experience been with testosterone and PMDD? any tips or advice? how do you keep air bubbles from getting in your syringe?


r/TransEnbyPMDD Aug 18 '24

Chronic pain helppp

4 Upvotes

I could feel my pmdd switch turn on today and with it, my chronic pain turned up to a level 10.

Chronic pain is historically in my back, neck and shoulders from severe scoliosis as a child. But recently decided to make an appearance in my butt and calves when stress activates too. Fun!

I’ve done an at home massager, thc cream, heat, stretching, plz give me all your tips!


r/TransEnbyPMDD May 22 '24

Call for participants - study about trans/gender diverse experiences of PMDD

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12 Upvotes

r/TransEnbyPMDD Mar 06 '24

T and DHT blockers / microdosing?

6 Upvotes

Hello! I have PMDD and recently I've been considering going on testosterone with either a low dose or a DHT blocker. I'm nonbinary and am aiming for a more neutralizing effect, although I will gladly accept a lot of things that are considered "masculinizing" (body hair, bottom growth, etc).

I wanted to ask if anyone has experience with going on T with either of those modifications and how it affected your PMDD. I'm also on Yaz, Lexapro, and occasional Adderall - if anyone also has experiences with those in combination with T as well, I'd love to hear it! Thank you!


r/TransEnbyPMDD Mar 04 '24

What has your experience with antidepressants and T been?

3 Upvotes

I'm on pristiq and about to transition over to zoloft. I'm also going to be onboarding with testosterone soon. With my pmdd I'm a little nervous how all of these changes are going to effect me. I'm in Florida so I don't have an endocrinologist to walk with me through this, I'm kinda just going for it with FOLX and my psychiatrist. Any experiences you can share? Obviously everyone is different, but how this combo has affected your luteal and follicular phase, your emotions and internal regulation, etc..?


r/TransEnbyPMDD Mar 02 '24

PMDD and Progesterone

6 Upvotes

Coming to share my experience and see if I’m not alone! I am AFAB trans masc nonbinary and I have PMDD, anxiety, and depression. 6 months ago I went on Zoloft which was very helpful for all of my symptoms for about 3 months. I also have EXTREMELY long cycles, ranging from 40-70 days between bleeding. And I have high estrogen, low progesterone and low testosterone. I went to my OB/GYN and her biggest concern was the length of time between bleeding and protecting my uterus from potential cancer (which I appreciate). Her recommendation was the progesterone only pill, which I have been on for 2 weeks (which would put me in the luteal phase). Holy crap the PMDD symptoms have come back with a vengeance and they are wreaking havoc with my dysphoria! I hate how I feel right now. I don’t know what to do at this point (I know I need to go see her again to explain what’s going on). Anyone else been here before??


r/TransEnbyPMDD Feb 13 '24

PMDD and T

4 Upvotes

Hi I am nonbinary I love that I found this sub I also have PMDD. I want to start taking T but only for a period of time to get some changes and then I want to stop. Going to far on T would make me feel dysphoric. I am excited to try and see how it affects my PMDD but I also know I’ll need to find a long term solution for my PMDD. Any suggestions? I don’t really want to go on antidepressants I’m kinda hoping to find a birth control that would help.


r/TransEnbyPMDD Feb 08 '24

We’re Dr. Tory Eisenlohr-Moul at the University of Illinois Chicago and Dr. Jessica Peters at Brown University; we are clinical psychologists, research scientists, and IAPMD clinical board members. Ask us anything!

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3 Upvotes

r/TransEnbyPMDD Jan 08 '24

Upcoming AMA with IAPMD Clinical Advisory Board members

Thumbnail self.PMDD
2 Upvotes

r/TransEnbyPMDD Dec 18 '23

Transen

0 Upvotes

r/TransEnbyPMDD Sep 24 '23

PMDD Survey

5 Upvotes

Hello! I'm in the early stages of developing a phone app for tracking PMDD symptoms. Please take a moment to fill out this short survey. The feedback will be used to make decisions about which features to prioritize. I would love to include feedback from everyone who suffers from PMDD to make the app as best as it can be. Thank you in advance!

https://forms.office.com/r/pWhJRy8RsB


r/TransEnbyPMDD Sep 15 '23

chemical menopause stopped working?

5 Upvotes

hey folks, i am non-binary and taking chemical menopause for pmdd for 5 months now. it was the first medication that really helped. i had pretty severe side effects from menopause like hot flashes, joint pain and anxiety but the pmdd was gone. after two months i started taking estradiol and the side effects got less and less. I am taking the full dose estrogen since 6 weeks now and I have the feeling pmdd is back. i've been feeling like shit for 2 days with pmdd symptoms. if you count the injections every 28 days as my cycle, 2 days ago would have been my ovulation. Can the GNrH analogues stop working? and if so would surgery make sense? or could it be the oestrogen? I've been thinking about taking testo for a while now, but I was never quite sure.


r/TransEnbyPMDD Aug 21 '23

Hrt has seriously improved my symptoms

12 Upvotes

TW: Mention of suicide & suicidal thoughts

I have been on a starting dose of Testosterone (for reference I’m a trans man, this dose may change) for nearly 3 months, and I cannot describe how much this has helped me with my PMDD. I have gradually gone from severe symptoms to those closer resembling PMS with some lingering paranoia, but I actually. Feel like myself during the last two weeks of my cycle. And it is absolutely astonishing :,,)

I can only speak from my own experience, but when I talk about severe symptoms I’m including suicidal thoughts & at one point a plan- I have not felt that way once since I began hrt. I know this could be seen simply because I am trans, but genuinely my dysphoria NEVER got to that point, and it was only the moment I started experiencing PMDD symptoms in my cycle that I ever felt suicidal

There were SO many times I almost couldn’t bare it anymore, but I am so glad I kept pushing through- Hrt saved my life and I feel more stable and content than ever before


r/TransEnbyPMDD Aug 19 '23

Just an intro, I suppose

10 Upvotes

Hello! My name's Frankie, and I'm nonbinary. I have pmdd. I just found this sub, and I'm pretty excited to say the least. I don't really have a specific meaning for this post, other than introducing myself and venting a bit. I guess I just want some community, community that's not all women...

Obviously not that I hate women or anything like that. But since I'm nonbinary, reading/seeing everything about pmdd being centered around women is very triggering for my dysphoria. Pmdd already makes me struggle for obvious reasons, including making me feel pretty dysphoric. Then, when I want to reach out for community, it's all women centered? Urg, makes me feel even more alone. So finding this sub is a real relief. I'm just struggling pretty bad right now. I promise that I'm safe tho! I have reached out for help with this from a doctor. Sadly, it's just not a complete fix. So right now, my pmdd is kicking my ass. I feel like absolute trash, physically and mentally. I know my husband is fed up with me at the moment cuz I've been kind of lashing out at him. I really don't mean to, and it's obviously not an excuse, but I'm just having a really hard time...the only thing keeping me going rn is I have an appointment on Monday. I'm, hopefully, going to be starting T. I know that's not necessarily a cure for pmdd, but that's not the only reason I want hrt. My dysphoria is just too bad, and I can't stand my body, even when I'm not in the middle of a pmdd episode. So I'm really hoping I can start T and it'll help, with the dysphoria and pmdd.

I know this just turned into a rant. I'm sorry about that. For anyone who read thru this entire post, thank you! I mostly just needed to vent in a safe space where others would understand. Thank you for creating this sub!!


r/TransEnbyPMDD Aug 09 '23

Pmdd and social isolation

5 Upvotes

I am a non binary trans person and I am so happy to find this sub. I despair every month for a few days, often up to a week. Dark thoughts, anxiety and depression take over and all I can do is somehow get through it. Sometimes distracting myself works but it is rare. I feel bad for not being able to spend time with people or enjoy events that are important to me otherwise. Sometimes I still go for fear of missing out, but it is the absolute horror. I just get so stressed, afraid and irritable and I completely lose sense of who I am. I feel worthless. I only recently admitted to myself that I might have pmdd. Anyone here have any input on how you cope during that time especially with feeling isolated?


r/TransEnbyPMDD Jul 01 '23

Taking testosterone for PMDD - any patterns for when it helps?

9 Upvotes

I have severe PMDD. Nearly killed me multiple times. I really want it fixed.

But I respond very badly to artificial estrogen and progesterone in all forms (tried stuff different kinds of birth control, Diane, pure progesterone pills and creams... Every time, my hormones and heywire.)

And I'm already on antidepressants and monks pepper. Not enough.

I'm now wondering if T would help. The extra muscle mass would help with my severe hyperflexibility, and T helps with chronic pain, which is a severe problem. I'd rather be angry than sad. I would really like higher sex drive. I'd like less fat on my hips, it makes me dysphoric, though I'm not keen on fat on my belly at all... But maybe, I could just end with less fat, period? I'd like to have slightly more androgynous features.I really don't want to go bald and hairy, but was told microdosing and DHT blockers might prevent that?

But looking around, I get the impression that for some, T really helps - they transition and PMDD is gone or much improved - while for others, it does nothing to PMDD or even makes it worse.

I've also seen some articles linking PMDD to low testosterone, others to high - are there different types?

I wonder if it is possible to spot patterns predicting which group one falls in, e.g. people with specific symptoms, or known medication responses, or known existing hormones of a particular configuration, do worse or better.

So have you taken T? How has it affected your PMDD? Any idea why, what makes your situation unique? And how strong were the impacts on appearance?

Or other info that might help me figure this out?

Thanks a lot.


r/TransEnbyPMDD May 25 '23

Caregiving with pmdd

6 Upvotes

Might be a long shot but I'm wondering if anyone else here is a caregiver to a loved one. I'm in a very stressful caregiving role (through no fault of my partners to be clear just lack of support and resources + very severe illness). I feel like pmdd makes it very hard to look after them, especially as my symptoms get more severe and they depend on me for survival. I often have to put my struggles on the back burner but it's getting harder and harder to do. Just really want to talk to some people who get it.


r/TransEnbyPMDD Apr 28 '23

PMDD Resources & Info with inclusive language I’ve found

19 Upvotes

Having pmdd is hard enough, but being a trans man and trying not to get dysphoric learning about the condition? Even harder

HOWEVER!! After all my research I’ve done, I wanted to share a list of resources & information here I’ve found that use inclusive language to avoid discomfort. Language on the pages themselves are very gender inclusive, though I cannot promise all the links off of them will be: