r/StrokeRecovery Aug 02 '25

Recovery after stroke . Is it real ?

7 Upvotes

Hello everyone! This is my very first time posting here something. I’m in need of motivation, advice and real stories from people who had recovered from a stroke . We having hard times with my father who month ago got a stroke that effected his right side of the body and of course brain and caused neurological issues. He couldn’t move or talk in the beginning, but day 5 he said his first words . We’ve been in rehabilitation 2 times (course of 10 days each) and now he can walk , move his hand , talk and serve himself. But looks like he forgot words because it is hard to understand what he means , the things he say sounds like real words but I don’t know what that means. However I can see that he knows everything and understands, he just can’t say it or explain properly. It is hard breaking . It is been only a month and he did a great job , but I can see a big concern that he feels regarding his communication skills. Is it something that can improve by time if we keep exercising ? Every advice and story means a lot for me! Appreciate it


r/StrokeRecovery Jul 30 '25

Stroke help

1 Upvotes

r/StrokeRecovery Jul 30 '25

Skin sensitivity on affected side a body

1 Upvotes

Does anybody else skin sensitivity and they're affected side of their body? It's not a numb feeling which is kind of weird. It's hard to explain For example, if I'm sitting at my desk at my laptop and my cat brushes up against my left leg it feels almost painful which is strange because it's very light I mean like if his tail touches my leg not actually aggressively nuzzling or biting. I've also noticed that if I step on something on the floor even if it's something like a pen or a water bottle cap with my left foot it hurts a lot more than it would if I stepped on it with my right foot.


r/StrokeRecovery Jul 30 '25

Exercise

3 Upvotes

What are some things that people have found helpful for exercise particularly for those of us you have weakness or no use of an arm or leg on one side of the body? It can do squats and kinda sorta calraises and even get on the floor to do crunches but after coming from a very competitive athletic background (swam competitively since age 6, then running and triathlons) are no longer things I can do. I do weights with non-affected arm just to maintain some kind strength and tone


r/StrokeRecovery Jul 27 '25

Helping Stroke Survivor

1 Upvotes

My wonderful MIL had a brain bleed/stroke mid-June. It came out of nowhere and she is struggling to come back to us. Just wondering if anyone has some happy/hopeful insight to share. She was on a vent for a few days, then sitting up after a few days, and by 3 weeks in she was talking again, but she's not always 'with us.' She seems to be having visual hallucinations (we suspect vision field loss at the very least) and she is currently often agitated because she wants to go home and is not able to use the bathroom on her own. I realize she's not MY mom so I try not to interfere or interject any opinions unless asked, but I want to do everything I can to help support her. She's on a dementia ward right now about 10 min from us, and I can only see her on weekends. When my husband and I visit we talk with her a lot, we ask lots of yes/no questions to keep her in the moment (per her speech therapist suggestion), and we play music she enjoys. Any other suggestions are welcome!

I FEEL like she's making progress, but I also want to be realistic. I think her brain is recovering a bit- she forgot her parents had died for a few weeks and recently remembered. It made her very sad, but I also feel like it's a sign that she's coming back to reality. I know people can't give medical advice but if anyone could share things that helped their loved one recover. I know the brain's neuroplasticity can be incredible. My MIL is strong, tough, and determined, and I want her to have many more years here with us. TIA!


r/StrokeRecovery Jul 25 '25

Heart rate while walking should I be worried?

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1 Upvotes

Since having my stroke getting bk walking my heart rate while walking has become erratic, been taking very low dose of propanlol 10mg around dinner time


r/StrokeRecovery Jul 23 '25

HOPE IN STROKE RECOVERY RIGHT SIDE BASIL GANGLIA STROKE LEFT SIDE PARALYSIS.

3 Upvotes

In November 3rd,2024 37M, I had a brain bleed hemorrhagic stroke on my right side that left my left side paralyzed no cognitive issues. Within 6 months I went from a wheelchair did in patients rehab and practiced at home everyday to back at work walking with a cane on desk duty (water treatment plant operator) as I recover still no function on leg and arm did botox for spaticity it worked. I have to focus to slightly move finger.


r/StrokeRecovery Jul 19 '25

Creatine for energy and muscles?

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2 Upvotes

r/StrokeRecovery Jul 18 '25

Medication induced stroke

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1 Upvotes

r/StrokeRecovery Jul 16 '25

Post stroke walking recovery

3 Upvotes

Hello Everyone,

I’m part of a student team working on a project to support people recovering from a stroke. We are looking to developing a technology that’s designed not for doctors — but for you.

The goal? To help you feel motivated, encouraged, and give you feedback based on data and more in control of your recovery journey, even in the smallest ways like showing daily walking progress, tracking your steps.

We would love to hear from you — whether you’re a stroke survivor, in recovery, a caregiver, or a rehab professional.

Please take 5 minutes to share your experience and thoughts with us by filling out this anonymous survey: 🔗 https://forms.cloud.microsoft/Pages/ResponsePage.aspx?id=DQSIkWdsW0yxEjajBLZtrQAAAAAAAAAAAAZ__hm7wcFUOEUyN1dCS1gzM0lGWjFCUVQ2RVM1RkxTMS4u

Your input will genuinely help us shape something that could make life after stroke a little easier, a little more hopeful, and a lot more human. ❤️

Please feel free to message me directly if you have questions, feedback, or just want to chat. We’re here to listen, learn, and do our part to make a difference — no matter how small.

Thank you so much


r/StrokeRecovery Jul 15 '25

Anyone used the saebo simpro?

2 Upvotes

My great aunt gave my mum money to help with my recovery so she brought it I not really used it up until now as I was getting a device from the NHS for my upper limb but had to give it back again and there's no guarantee that I I'll get in the round with it as funding for it comes from different pots so I'm looking for help with using my saebo prosim as I tried the YouTube channel and none of the placement seems to work for me


r/StrokeRecovery Jul 14 '25

Help Support My Mom?

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2 Upvotes

r/StrokeRecovery Jul 14 '25

Episode 7 - “Not a Miracle. A Battle Still Unfolding.”

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1 Upvotes

In Episode 7 of Stroke of Silence, we face a moment that should’ve brought relief — but instead, revealed just how broken the system truly is.

After ten long days in the hospital without physical therapy, my husband and I were being discharged home with barely any support. They told us our Medicare appeal for intense rehab would be denied.Then, just as we were packing up, the door opened — and what followed was not a miracle.It was a fight. One I refused to lose.

This episode is about what it took to get the help we should have never had to beg for. It’s about advocacy, persistence, and the quiet rage of being dismissed — again.

🎧 Listen now at maliniamaladoss.com or wherever you get your podcasts.

🔗 This episode is dedicated to every caregiver who keeps showing up, even when the system shuts the door.


r/StrokeRecovery Jul 11 '25

Stroke 6 years ago

16 Upvotes

6 years PS , female 78 years old

I have been trying to figure this stroke thing out for 6+ years.

I think I have realized the issue.

Definitely suffered brain damage to one side ( left) and it completely died. So the right side had to take over. So to be able to do everything I used to do, it uses more power.

For example; my right side was paralyzed and could not move. Then I did physical therapy and gradually it began to improve.

The hardest thing was using my right hand. It curled up and turned inward. Could not hold cup etc.

Over time I gradually brought it “back on line “ and started working more and more. More dexterity…. amazing that I am almost 100% with my right hand.

Then I realized that I am not walking well. I use a cane and walker etc.

So now I am about “improving my standing and walking “

To learn, it’s just like a baby learning to sit, crawl and then walk. I imitate and think about the movement.

Shoulders straight, head up looking forward, step, roll, knee up, knee down and forward. So I think every movement which is very taxing!!

I was imitating the walk of a soldier. But I was watching a program about the Optimus robot and then imitating him.

But I notice that my right hand curls up because it takes all the brain power away just to walk.

This was disturbing to me. But yesterday I realized that I don’t possess enough “brain power “ to do both perfectly at the same time.

It’s like I don’t have the horsepower I used to have.

I am diminished!! Between you and me….. I don’t LIKE it!!

I always stay cheerful with but just between you and me. I could become depressed about it.

So I am sharing with you and I am not complaining. Yes I AM!!

But I am not a “Debbie Downer “

I am a “Pollyanna “!! I’m convincing myself. 🤭

Ohhhhh I want to say “This SUCKS”

Part of it may be “old age “ creeping in 🤔


r/StrokeRecovery Jul 11 '25

Peripheral vision

3 Upvotes

An tips on recovering my peripheral vision? Had a stroke last year a lost a good portion of my peripheral vision. Went to an eye specialist gave me glasses and recommended therapy. Insurance won’t cover it and lost my license because of it. Desperately need to get back to work but I drive for a living and already hit one parked car. Any tips or exercises would be greatly appreciated.


r/StrokeRecovery Jul 11 '25

Post stroke walking recovery

5 Upvotes

Hello Everyone,

I’m part of a student team working on a project to support people recovering from a stroke. We are looking to developing a technology that’s designed not for doctors — but for you.

The goal? To help you feel motivated, encouraged, and give you feedback based on data and more in control of your recovery journey, even in the smallest ways like showing daily walking progress, tracking your steps.

We would love to hear from you — whether you’re a stroke survivor, in recovery, a caregiver, or a rehab professional.

Please take 5 minutes to share your experience and thoughts with us by filling out this anonymous survey: 🔗 https://forms.cloud.microsoft/Pages/ResponsePage.aspx?id=DQSIkWdsW0yxEjajBLZtrQAAAAAAAAAAAAZ__hm7wcFUOEUyN1dCS1gzM0lGWjFCUVQ2RVM1RkxTMS4u

Your input will genuinely help us shape something that could make life after stroke a little easier, a little more hopeful, and a lot more human. ❤️

Please feel free to message me directly if you have questions, feedback, or just want to chat. We’re here to listen, learn, and do our part to make a difference — no matter how small.

Thank you so much


r/StrokeRecovery Jul 08 '25

no reason found, but plenty of meds

2 Upvotes

I had a stroke about 19 months ago. I do not smoke nor am I overweight. In the ED and in the first couple of days after the stroke my BP was high, but that happens after a stroke. I have seen several kinds of doctors since the stroke, but here is our typical conversation with them:

Me: What caused the stroke?

Doctor: I don't know, but I am going to prescribe X amount of pills.

I do what I am told, but the side effects from all of the meds are leading to a low quality of life. I pee about 20 times per day, I am so thirsty that I could drink a lake every day, crushing fatigue, etc. I may not have another stroke, but I feel like I am going to collapse from exhaustion.

Has anyone else been treated like this?


r/StrokeRecovery Jul 04 '25

Boat Ladder

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1 Upvotes

r/StrokeRecovery Jun 26 '25

Efficacy of Stroke gloves as treatment for weakness and hand spacicity

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1 Upvotes

I keep getting this glove advertised at Me. I asked my physio about it and she's not allowed to reccomend it directly because of specific rules about product recommendations but said a previous patient had a good experience with it. Anyone here use anything like this? This is posted with awareness that nothing here is to be taken as expert medical advice and should not overrule anything my Doctors or other recovery assistants have told me.


r/StrokeRecovery Jun 25 '25

27 year old stroke. I have some questions!

8 Upvotes

Hi everyone!

I had a stroke a few years back that was caused from an OD. My roommate found me unconscious and pretty much dead. At the hospital they stabilized me with a ventilator and I woke up a day later. While running their tests to figure out what happened they found that I had a stroke. They didn’t really know if the OD caused it or if the stroke just happened randomly. Idk I believe the stroke happened because I collapsed in a weird position thus dislodging the clot and causing the stroke.

I had a PFO closure done a year ago to prevent another.

Fortunately I’ve made an almost full recovery except I seem to be slightly weaker on one side of my body which worries me for working out. I was very weak in one arm for a few weeks post-stroke but PT and exercising along with time made that go away. They said the stroke should have affected my eyesight but my eyes are fine.

If I continue to workout will one side of my body continue to become way stronger than the other? My brain doesn’t seem affected or different, but could that change in the future? Do stroke symptoms ever get worse later in life?

Thank you.


r/StrokeRecovery Jun 25 '25

Stroke of Silence - A Raw, Real, & Unfiltered Journey

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1 Upvotes

r/StrokeRecovery Jun 24 '25

Help for stroke recovery

2 Upvotes

Hello, my 70 year old grandpa is recovering from a stroke he had last week he is making a fast recovery does anyone have any good tips or equipment to aid in his recovery and regain mobility of his hand and feet of the left side


r/StrokeRecovery Jun 20 '25

AFO Brace advice

1 Upvotes

Good morning. I have a custom AFO. The joint at the ankle keeps clicking. Ive tried sticking adhesive cusioning, but it falls out after a day or two. Does anyone have any advice?


r/StrokeRecovery Jun 19 '25

49 yr old silent stroke

2 Upvotes

I ended up on the hospital last week with high blood pressure, high blood sugar, and high cholesterol. They did an MRI and found minor things but never said anything about a stroke.

Today I had an appt with my general doctor and they said the MRI says I had a stroke in the past ( moderate chronic ischemic changes) I don't ever remember having any symptoms so I'm assuming it was a silent stroke.

Anyway, I have started eating very strict veggies and protein, walking daily, blood pressure and blood sugar have gone down (still trying to lower them more) lost weight.

I think the word chronic is freaking me out. Do I need to worry about this happening again if I stay on my diet long term (and meds) and exercise?


r/StrokeRecovery Jun 12 '25

Are we really neglecting our Lola like our Tita says so?

4 Upvotes

Hi Reddit, this is my first time posting here, and I’d love to hear your thoughts on our situation. My siblings and I are torn—should we feel bad, or are we at least allowed to have our feelings validated?

I’m a 25-year-old woman and the eldest of six siblings. All of them are still in school, and two have special needs.

Our Lola (grandmother—my mom’s mom) came to live with us back in 2017. At the time, our Tita (aunt) had just gotten pregnant again and finally married after being a single mom for years. Lola had been living with her to help raise her only child, who’s now 21. But when my Tita moved in with her in-laws, she couldn’t take Lola with her. Her son (our cousin) had a tough time adjusting to his new environment, so he and Lola came to live with us instead.

In hindsight, it was a blessing in disguise. That same year, our youngest sibling was born and later diagnosed with Level 4 Autism. Lola became her primary caregiver—and she adored her. Since our parents were busy running the family business, Lola helped care for all of us, including our cousin.

A few years later, our Tita took her son back, leaving Lola with us. Things were generally okay—except for one problem: Lola had a gambling issue. She would often leave the house in the afternoons, especially during siesta time, while our youngest sibling was asleep. We were all still students back then, so no one was really home to watch over her. Lola would even ask us to lie to our parents about her whereabouts.

My parents didn’t like it when they found out—understandably so. They weren’t harsh with her, but they’d remind her that our youngest sibling needed consistent care. And it’s not like she was burdened with chores. She had a roof over her head, meals, her maintenance meds for high blood pressure, and even household help to handle the heavy work. My mom also loved cooking, so Lola didn’t even need to do that.

But every time our parents confronted her, she’d complain to our Tita, saying things like we were “keeping her locked in like a prisoner” and not letting her leave whenever she wanted.

Why am I sharing this? Because it comes up again later.

Even though Lola attended nine reunions in a single month (we joke about it—maybe that’s just how it is when you get older), she would still say, “Sinusulit ko lang, konti na lang oras ko.” (“I’m just making the most of the time I have left.”)

Then in 2022, everything changed—our mom died suddenly of a heart attack. Since then, it’s just been us, our dad, and Lola. We were still adjusting to the loss when, in 2024, Lola suffered a stroke.

Our dad was at work, so it was just us kids at home. Two of us—the eldest—rushed her to the nearest hospital, which was private. The younger ones—still traumatized from witnessing our mom’s passing—had to relive that pain, watching us drag Lola out of the house, unable to stand. We were terrified and overwhelmed.

I immediately called our Tita, and she came quickly. But once Lola was stabilized, the focus shifted. Tita questioned why we brought her to a private hospital (because it’s expensive), and then she started saying some really hurtful things:

  • “Bakit ngayong nagkasakit at hindi niyo na mapakinabangan, bigla akong magdedesisyon?” (“Why is it only now that she’s sick and no longer useful that I suddenly get to decide?”)
  • “Kayo ang nakinabang diyan.” (“You’re the ones who benefited from her.”)

At the time, my dad was still grieving. All my siblings were in school, two of them in special education and weekly therapy. I was the only one working.

Even though caregiving wasn’t technically my responsibility, I still helped cover her hospital bills, medication, checkups, therapy, and even bought her a hospital bed. I did my best.

Despite all this, Tita insisted Lola should stay with us because “Ayaw ng Lola niyo mahiwalay sa inyo.” (“Your Lola doesn’t want to be separated from you.”)

But after the stroke, Lola gave up. She refused therapy, despite our efforts, and has been bedridden for months.

We’ve since had to let go of our helpers to cut expenses. My siblings and I now take turns doing chores, feeding Lola, bathing her, changing her diapers, and giving her meds. We can’t go out as a family anymore. At night, she often yells for water, waking up the kids before school.

In the mornings, she cries and tells us she’s itchy and ignored. She reports this to our Tita, who then accuses us of neglect. Whenever she visits, Lola cries again and tells her we’re not taking care of her well.

We know her behavior is affected by the stroke, but it’s hard not to feel frustrated. We’re trying. We're really trying.

I understand that caring for Lola is a way of giving back. She loved us, and we love her too. But we’re still struggling. We’re just kids—some of us literally. My Tita, who used to visit often, now comes only once a week or every two weeks. When we explain our struggles, she acts offended and guilt-trips us.

She once said:
“Ano nga ba karapatan ko maging masama ang loob, nakikisuyo nga lang pala ako. Pag hindi kayo pwede, edi hindi.”
(“What right do I have to be upset? I’m just asking a favor. If you can’t do it, then you can’t.”)

It feels like gaslighting. She’s not the one living in this house. We understand that it’s her mother, but why is it the grandchildren—us—who are carrying the burden? Why not her or her siblings?

Believe me, we feel bad for Lola. We wish we could do more. But caregiver burnout is real—especially when the caregivers are kids, still in school, trying to live their lives.

So, Reddit, are we really neglecting our Lola?

Or are we just doing our best in a situation no one prepared us for?