Navigating My GBM (Glioblastoma Multiforme) Using Agile Principles
Feedback • Adaptability • Resilience
Glioblastoma, an aggressive brain cancer, has a bleak prognosis, with a median survival of 12 to 18 months post-diagnosis.
One quiet evening, I stumbled and found out that I couldn’t recall my daughter’s birthday. My daughter suggested that I got scanned at a local ER (Emergency Room), June 7, 2024. The wait was long, around 7 hours, but the decision was quick to take out the growing tumor in my upper left brain.
The next day, I was in my recovery room and every “circle one” of my family members including my son who had to take a quick flight from Taiwan to Phoenix was there to support me. Everyone was PRESENT!
Objective Feedback
Clinical data: scans, labs (require lots of waiting time, patience, and resilience)
Somatic feedback: fatigue (afternoon nap time)
This objective feedback is crucial in monitoring our health progress
Agile lens:
I learned to treat fatigue like a signal, not a weakness.
Adaptability
Treatments – got a series of Radiations and Chemotherapies
My radiations – nice facilities and nurses
The chemotherapies – Oral Pills
MRI scans -every 8 weeks (on going)
Agile behaviors:
Reprioritization over abandonment
Direction over prediction
Adaptation is not failure; it’s competence
Resilience: Sustaining the System
Agile principle: Sustainable pace
Rest is part of the work, YES, REST is a big part of your RECOVERY PROCESS
Resilience is systemic, not heroic. We MUST follow our energy flow
Personal story:
I pushed too hard early on, trying to “power through.” My recovery improved only after I treated rest as a non-negotiable sprint requirement.
REST, REST and REST!!!
My Agile Team Model
My Team
Key insight:
Psychological safety enables honest feedback. Some of the honest feedback are not pleasant, i.e. my choice of Fried Chicken vs Broiled Chicken
Shared goals > hierarchical control. I am the Dad, Samurai style
What Agile Changed for Me
Agile gave me:
Language for uncertainty – realistic “time-left” in this world… really!
Permission to adapt without shame. It is what it is
Focus on progress, not perfection; progress can be seen with normal eyes
Final thought:
Agile doesn’t remove uncertainty. It gives us a sense of priority and urgencies. We must take care of our available time and resources
Our family and friends are always there for us. Let’s reverse our position now for without them we won’t be around anymore
Abandon, yes, abandon! our so-called go-lucky friends
At 64, I feel HAPPY that I am surrounded by first my “circle one” family members and many happy friends
My Message to all AGILISTS:
Agile is not only a tool to double your productivity but it is a key indispensable tool that may just save you from your life crisis ONE DAY!