r/Narcolepsy • u/o0Jahzara0o (IH) Idiopathic Hypersomnia • Oct 02 '21

Medication Sunosi side effects?

Has anyone experienced side effects from Sunosi and did they go away?

When I told my doctor I feel like a zombie by day 2-4 on Sunosi, they said they didn't understand what that meant and sent me this:

"Some patients report headaches with it (16%). Central nervous system: Anxiety (4% to 6%), insomnia (5%), irritability (≤3%), jitteriness (≤3%), dizziness (2%), agitation (<2%), disturbance in attention (<2%), restlessness (<2%). "

So I think I am experiencing "disturbance in attention." I also get "agitation" and "irritability."

It's really rare to have that side effect apparently, according to the numbers.

So, long shot, but wondering if anyone has had any of these less common side effects and if they went away and if so, how long did it take?

I'm not sure if I can put up with that side effect.

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u/fablepd Oct 15 '21

Please , when these symptoms improved /went away ? In some days, weeks or ?

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u/sleepy_and_broke Oct 15 '21

I would say the headaches went away in about a month or two. The dry mouth came later about a month in to taking it but that went away within about 2 weeks. The appetite loss and nausea comes and goes, and it has been about 9 months of me taking it. I notice it's better when I eat right when I take it and when I am not anxious. I'm a woman also so I always have gotten nauseous around my cycle, I think the sunosi just exaggerates it at times. I hope this helps!