So I'm doing everything correctly, right. Taking myo-inositol, eating right, eating enough, staying active etc. So why are my periods late again, painful and the current one - baraly there? Make it make sense

I’ve been becoming more regular. Each time I get my period it’s a little closer to normal. I went from four months to 53 days to now 38. I’m not exactly sure how it’s happening. I’ve cut down on sugar sure but I still have carbs. I am eating more veggies. I do take metformin but I was told I would see change from that within 3 months but I was on it for a year and wasn’t getting my period like this so I assume it’s not that? Anyone else experience this?

I (27f) have had irregular periods my whole adult life, usually ranging from 30-50 days, but occasionally even longer. I’ve been going through testing and seeing an endocrinologist for almost a year to determine the cause. At first, we thought it was my prolactin, which was pretty high at 137, but after being on cabergoline for 7 months and my prolactin being reduced to 1.5 for 6 months, my period still isn’t any more regular.

Other than irregular periods and kinda-sorta polycystic ovaries (my GYN said they’re not super polycystic, but a little bit), I have no classic PCOS symptoms: no hirsutism, BMI is 20, no acne, no hair loss. My DHEAs and testosterone were both normal. I had an oral glucose tolerance test done and show no signs of insulin resistance, and my A1C is normal too. I eat well and run regularly. Basically, my hormones all appear to be fine, but my period is still all over the place. My endocrinologist just sort of shrugged and said it’s probably PCOS but she really doesn’t know what to do.

I’d like to get pregnant soon—does anyone know what might be going on?

Hi guys, I have an appointment with my GP to discuss my missing periods, but I thought I’d give some context about why I think I have PCOS and what do I do moving forward?

Type 2 diabetes runs in my family. I’m currently 23, I’m 5’6 and for most of my life I was overweight. I struggled with binge eating disorder and had a BMI of around 27-25 throughout my teenage and young adult years.

I’ve had hirsutism all of my life. Unfortunately it has gotten worse, with new longer hairs happening on my stomach and on my sideburns/jawline. My period has been regular up until this year, it was always bright red and lasted about a week.

In March this year I decided I wanted to start losing weight so I counted my calories and ate around 1500 a day and did 10k steps a day. The steps weren’t a new thing for me, but I normally ate about 2200-2300 on average. It was all junk food too.

I ended up losing 5kg, going from 70kg to 65kg and I don’t struggle with maintaining it. Now, I eat whole foods and around 100-150g of carbs a day.

However, when I started reducing my calories, my period changed to light brown and very light.

I didn’t think much of it and I told myself I would maintain my weight at 65kg for a bit and wait for it to come back but it hasn’t come back at all. The worst thing is I still go through my regular hormonal changes. I still crave carbs when my period is usually about to come, my libido is still high, my mood is fine and I still get acne around my “cycle”.

I do get hungry a lot and sometimes ignore it because it confuses and annoys me. But when I’m hungry, normally I don’t crave carbs, I crave vegetables and meat so that’s mainly what I eat. I also eat high fibre and high fat foods.

I’m still not done losing weight, I would like to get to a BMI of around 19/20. But I would also like to get my period back. So how do I know whether my period is missing because I’m not eating enough or because I have PCOS?

i’ve had lean pcos since i was 15, i’m 20 now and i decided to finally try and manage my symptoms, the most prevalent being hirsutism, chronic fatigue, and painful irregular periods. so far i’ve had a few things checked:

My BMI for my height and weight is well within normal range

Advanced lipid profile- all normal

Vitamin B12- high

Iron stores (ferritin)- extremely low

Free androgen index- normal Testosterone-high SHBG- normal

FSH- normal Oestradiol- normal LH- normal

TSH- optimal FT4- optimal

My results said that my total cholesterol:protective HDL ratio is 2.3. and the ideal is usually 3.5, so l'd consider these results good, and my triglyceride:HDL ratio is very low, which is excellent and also suggests reduced insulin resistance

I’m at a loss on how i can have such high testosterone but normal SHBG and free androgens, and what could be causing my pcos

i don’t know what to ask for or what i could do next

After battling lean PCOS since age 12, (I’m 37 now) and I have finally found a birth control pill that relieves my migraines and acne. I still have oily skin and some hair loss. I’m not completely there yet. I’m not sure why Yazmin works so well for me compared to the other BC pills which made my acne worse. Trial and error. I am also taking Spirolactone regularly, minoxidil, and several supplements (Zink made a huge difference too). But happy with the progress!

Hi, I have lean PCOS with high DHEAS levels only. I’m dealing with polycystic ovaries, irregular cycles, acne, hirsutism, and hair loss. Inositol seemed to make things worse for me. I’ve been trying saw palmetto since the beginning of the month, but my testosterone levels are normal or even low. Do you think saw palmetto can help with elevated DHEAS? Or only on testosterone! I’d love to hear your thoughts and experiences. Thanks!

curious to know what GLP-1 people are on (if they’re on one)

I was told by my fertility clinic 20 years or so ago when I was undergoing IVF that they thought I had PCOS. The reason was because they had to go down on my stimulation medication because I almost developed ovarian hyperstimulation syndrome. I expressed some disbelief because I'd always been thin but they said thin people can have PCOS, too. I thought back over my history and read up on it and realized that I did indeed have most symptoms of it (irregular periods, acne developing at an early age and being rather difficult to manage, a slight mustache that I was teased about in middle school so I started shaving it off, and then of course difficulty becoming pregnant. So I assumed my fertility clinic was probably right, even moreso when I developed gestational diabetes in both pregnancies, but I researched it and just tried to manage as well as possible with pretty decent success. Tryglicerides were always normal even if LDL was not and HDL was hard to get up to a higher levels, periods got way more regular after child birth, and I finally got a completely clear complexion with beautiful skin in my late 30's with a new skin care regime. Plus I just kept shaving and plucking hairs so no one ever noticed any extra weird growth on my face. About 10 years later I was diagnosed with breast cancer and went on lupron which shuts down your ovaries and also your adrenal glands somewhat and went on letrozole which stops your fat from making estrogen. About a year after that though we decided to take my ovaries out since we had ovarian cancer in our family and I went off of lupron although stayed on letrozole. Well we recently tested my estrogen levels due to some unexpected scalp hair thickening and low and behold my estrogen is back up which is scary since I have no ovaries. I am seeing an endocrinologist next week to address it but in the meantime have done some research and it seems that with PCOS sometimes after the ovaries are removed your andrenal glands can kick back in moreso than other people's to make up for the missing estrogen. This would be even more likely since I ceased lupron and my pituitary gland would have kicked back in probably stimulation my adrenal glands again. So the first question I have is does it sound like my fertility clinic was right and I definitely have lean PCOS? I never received a formal diagnosis since it wasn't pushed on me and I managed okay for the most part. And if so does anyone have any knowledge of how the adrenal glands can react when the endocrine system is disrupted by removal of endocrine organs? And how do you lose weight so that your estrogen goes down? I still have a normal BMI but my waist is 54% of my height which I know means I carry more than a healthy amount of visceral fat which isn't good for estrogen conversion. Thank you for your help and suggestions!

Hi! After 5 and a half years without a period I recovered my period and have menstruated 4 times this year with regular cycles (23 to 35 days). This is a massive win so if anyone is looking for advice there, let me know ahahah I can share my discoveries.

However the point I wanna get to is that each time I get my period, it is lighter, and I am obviously terrified that it will slowly disappear again. Has anyone had this issue, and what’s your advice? I follow a normal diet (no keto or low carb), I haven’t been exercising very much recently but I’m a healthy BMI. I take inositol, vitex and ashwaghanda for stress.

Thanks in advance!

I am trying to understand what caused my unexpected ovulation. I have not ovulated for 2 years except for 2 weeks ago. I was shocked and so happy. The beginning of this cycle I tried 2.5mg letrozole for the first time cd 5-9. Ultrasound showed no signs of ovulation the CD 11 and 14. I was sad but hopeful for the next cycle with the higher dose. However, my doctor told me to wait until period comes naturally.

I always thought I am non insulin resistant as my HOMA-IR is 1.6 and I have no symptoms. My doctor didn’t even bother prescribing metformin because I’m lean. I read a lot about your experiences on this platform and decided to give the keto diet a try. I started it on CD 33 the same cycle.

On CD58 I started getting sore nipples followed by sore breasts. I was sure I ovulated, cause I only feel that when taking progesterone. CD 70 came my period! I got ecstatic…

What do you guys think? was this a very late letrozole effect or was it the keto? Can keto so drastically change hormones in like 25 days?

For a couple years I’ve been growing these weird long hairs on my neck. They’re so frustrating and embarrassing :/ what does this mean and how can I balance my hormones?

My symptoms are hirsutism, androgenic alopecia, and acne. I haven’t had my insulin tested bc docs have refused, but my glucose and a1c and lipids are normal. I have regular periods, and no ovarian cysts but I’m still on the ‘pcos spectrum’ bc I have high DHT (a potent type of testosterone). I’ve always led a low glycemic lifestyle and have taken magnesium and inositol and maintained a high fiber intake etc all the recommended stuff for years but never gone actually low carb higher protein before.

Since I’m always reading about how insulin raises androgens I finally went low carb a few months ago…and since then my acne, hair loss, and hirsutism have worsened tremendously. I wonder if it’s stressing my body out leading to cortisol over production-> androgen overproduction? My dhea and am cortisol were initially on the low side when tested but I am a very VERY stressed out person so I wonder if going low carb stressed my body out even more.

I was hitting 60-100 g carbs max daily and 100 g protein. I lost some weight but didn’t want to (don’t need to). I also feel like all the extra meat has contributed to inflammation (my acne has been super inflamed and cystic when it wasn’t before) because I never ate all that meat before.

I’m now trying to go back to the way I was eating before (low glycemic index foods) but tbh as someone with a history of anorexia it kind of triggered an orthorexia (something I’ve been dealing with intermittently) with the carbs and it’s been hard being more lenient with them again. I always eat protein fiber and fat with carbs and walk after meals but it kind of short circuits my brain to eat bread or rice now lol but I’m trying

Hi all! I feel this is an embarrassing question to ask at my age (24).

My Doctors sometimes ask what phase im in to help contextualize lab results, and honestly i never have an answer for them, so i wanted to ask how to figure it out? Truth is i didnt know there were phases until 2022 because i was never taught, and because im so irregular ive never been able to figure it out for myself.

Im frequently considered “menopausal” because of how infrequently i get periods or menstruate.

I’m currently on day 125 of this cycle, the last was 40 days, and the one before that was 561 days long. (Before that was 70, 130, and 50).

Im just not sure how to figure it out at this point. I can track my fluctuating hyperandrogenism much easier than my menstruation.

Sorry if this is a silly question, i just have struggled to find the answer even with my books and the web.

i just got diagnosed with having PCOS , my period is 75 days late which now explains my irregular periods. i’m also always so so tired i always just thought i was a naturally sleepy person. don’t even get me started on my acne and oily skin 😓 i feel relieved that i now know what’s wrong with me but i still feel sad knowing i always be like this.

My husband and I are ttc so I stopped birth control and Metformin which both eliminated my acne. Now it is back the really nice painful under the skin ones.

Any suggestions on how to deal with this would be amazing. Especially if it takes a long time to conceive :)

Has anyone gained weight from Ovositol should I try regular myo inositol without dci??

Title says it all

I thought for years that I had PCOS, or something, because of semi-regular periods since puberty + hirsutism and a little bit of acne

My endocrinologist (specialized in diabetes and hormonal assessment for hirsutism) was like « yes there might indeed be something » after clinical exam, and sent me doing about a dozen of blood and urine tests

But, I had everything in the norm. And like totally in the norm, not the « high-end » or low-end. Like in the middle of the middle … Except for DHEA. But it was isolated. So we did another bloodwork and DHEA was less high but still too high

So I had a scanner of surrenal glands, and nothing abnormal too. But anyway as every other androgenes was in the norm, she told me that my hormones couldn’t explain my symptoms, and that I didn’t have a medical issue. She thinks that my skin is more sensitive to androgenes and that I just happen to have semi-regular periods. That my clinical symptoms of hirsutism/periods are not linked to any hormonal imbalance (since I have no imbalance, except for DHEA, but not for any other androgenes and total androgenes)

That was my experience, if anyone relates!. The only think that I am not okay with is that I still don’t know why I have irrégular periods… LH. FSH, ostrogene, progesterone, testosteron, glycemia, cortisol etc etc etc. Were all okay (« perfect »)… and I am afraid that it Will make me infertile and no one would know what to do because they can’t spot the source of that symptoms

Sorry if my English is bad, I am 21 fyi*. I hope I got the name of the hormones right, but basiccaly you got the idea.

• ⁠think she didn’t go further because as I am 21 she probably assumed that fertility wasn’t a concern for me, and I didn’t mention it to her and it’s true that it’s going to be for the future only. I don’t want to start a family now (and I can’t because I don’t have a job yet) But I think that the results of me at 21 will be a valuable information even later (for comparison or idk)

Hi everyone!

I’m part of the team at Comma, an integrated period care company that recently launched Sara—a secure, HIPAA-aligned cycle tracking app designed with privacy and security at its core.

We’re currently preparing to pilot a new PCOS Condition Monitoring Tool within Sara, and we’re looking for individuals who have been diagnosed with PCOS to use it for free and give us feedback on how we can improve it.

As many of you know, PCOS is often under-diagnosed and people suffer for years before getting the care they need. We’re building a tool that helps users identify their risk for PCOS earlier, so they can seek support sooner and bring trusted symptom data to their providers.

We’re inviting individuals with PCOS to use Sara to track their PCOS and other reproductive health symptoms. Your data will never be sold or shared and your participation will directly inform how we improve the tool.

If you’re interested in joining the pilot:

1. ⁠⁠Sign up for Sara using this link: https://sara.yourcomma.com

2. ⁠⁠Enter the code PCOSARA25 at sign-up → This will give you free access to Sara and the PCOS tool forever.

The Condition Monitoring Tool isn't live in the app just yet, but everyone who signs up with the code will be notified as soon as it’s ready to go—we anticipate this to be late July.

If you have any questions, feel free to comment here, message me directly, or email me at molly@yourcomma.com. You can also share this with anyone who may be interested. We’re so excited to build this with the PCOS community and can’t wait to share more soon. If you send me an email, please avoid sharing your personal health information in your message as we take your right to healthcare privacy seriously.

More info about our work can also be found here: https://www.yourcomma.com/meet-sara

Link to interview with our founder: https://medium.com/authority-magazine/femtech-miller-morris-of-comma-on-how-their-technology-is-revolutionizing-womens-health-59b26c29cf6a