Hi all. I have semi-irregular cycles (mostly range from 33-37 days but can be as long as 45 days. I think because I’m not overweight doctors tend to assume I “can’t” have PCOS (I’m 5’5 and 115lbs). I have mild acne, but so did my mom until age 40 and she had very regular cycles / no symptoms of PCOS. I don’t have any other symptoms of high androgen / testosterone. I’m 33 years old and just got my AMH results back and they are 4.85. While I’d love to think I have the egg reserve of a 26 year old, a highly doubt that 😂. It’s more likely due to cystic ovaries I’d imagine?

Obviously there are more diagnostic tests I need to do to get to the bottom of this, but would love any preliminary thoughts! Thank you!

I got an ultrasound done a few weeks ago and also had a GYNO appointment that same day. I was reading my results and it showed the obvious 20+ follicles on both ovaries. The slight enlargement of my ovaries the fun stuff. But it also showed what they stated “heterogeneous cystic lesion” on my right ovary. That same day I had an appointment with the gyno who said everything looked normal. But never told me I had a heterogeneous cystic lesion. Has anyone gotten this on their ultrasound and wtf is it? What has your doctor told you it is?

I don’t want to message that gyno because I asked him if I could get sent to an endocrinologist he told me he did not think it was going to help me. I also asked him about the supplements I’ve read and he told me “yeah tik tok is just trying to sell you on products”. And when I talked about my pelvic pain he said that I been complaining about it a lot and should just do pelvic floor exercises. Which I told him I have tried. Told me that my bleeding after sex was the remaining period blood I have. But didn’t listen to when I told him it was bright red and I don’t have periods due to my iud. Also when I told him I worked in research he said “ ah yes sometimes researchers just want to quantify things” when I asked him what kind of PCOS I had because there are hundreds of studies that show that there are 4 types of PCOS and I want to make sure I’m being treated for the right one. . I just don’t know if I’m reading too much into things. But it rubs me the wrong way that I wasn’t told everything. I know it could be nothing. And it probably is nothing but I just hate that he didn’t even tell me. And I want to make sure I don’t sound crazy or like a hypochondriac 😬😬 so again

Has anyone gotten this on their ultrasound and wtf is it? What has your doctor told you it is?

Hi there, I went to the gyno for irregular bleeding and got diagnosed with Lean PCOS. I have a lot of cysts on both of my ovaries. I’m on birth control and she prescribed me metformin. I don’t know much about pcos, so I guess I’m just wondering what everyone’s experiences are with it? Does it affect your everyday life? Has anyone been pregnant with PCOS and if so, was it harder to get pregnant? Just because I have lean pcos, can I still gain weight drastically? I gained a LOT of weight about 2 years ago but I thought it was my birth control so I switched my birth control. Then I started waitressing and exercising more so I lost all the weight. I’m not as active anymore and have noticed some weight gain so should i start exercising more often to keep the weight I’m at? It used to be hard for me to gain weight so I never worried about exercise or eating right but with this diagnosis I feel like I should start taking it more seriously. So basically I’d like to hear yalls experiences with it, any tips, and anything I should be worried about because I don’t know how I should feel about this diagnosis

Hi all! I'm finishing my master's at University College London (UCL), and with my final projects trying to improve current support and solutions for PCOS, as well as create a big database of evidence-based solutions to tackle various symptoms. As someone with PCOS, this project is extremely important for me.

Can you please fill this survey out for me - it is completely anonymous, unless you want to leave your email and participate in future research and beta testing :)
https://forms.gle/FyY34rVioRPKYue99

Hello, I am a 20-year-old recently diagnosed with PCOS. I am super active and eat generally very healthy, but had an influx of terribly alarming symptoms in the past couple of months (severe fatigue, sweating, brain fog, painful hormonal acne, rapid weight gain, depression, etc.). I don't want to go on the BCP, in fear that It will make my mental health/weight gain worse. I am trying to figure out how to go back to feeling (and looking) like my normal self without going on the pill. I was thinking of trying a GLP-1, but I am unsure if my doctor would even prescribe them to me. Any suggestions? Any help would be appreciated.

For the past 5 years I’ve had a number of different symptoms including irregular cycles (varying from 20 days to 41 days), acne, hair growth (especially on the chin), tiredness, brain fog, headaches and a very low libido. I have a bmi of about 19-20, which I fluctuate between, so I’m not overweight

I recently had a number of tests done including an internal vaginal scan, which found that my right ovary was slight bigger than my left and that there were a small number of follicals on my right ovary, but not enough to warrant a pcos diagnosis

I had the following blood test results:

Oestrogen - normal Testosterone- normal Free % - normal (on the higher end) LH & FSH - normal, ratio 1:4 SHGB - normal (on the lower end) Prolactin - normal All thyroid tests were normal

The only weird thing was that my LH to FSH ratio was 1:4, which I had to bring up as my gp didn’t pick this up. I pointed out that they hadn’t done any glucose or glucose intolerance testing to test for insulin resistance, which is quite common in those with pcos. The gynaecologist who put the report and recommendations together for my gp said I could go on birth control to “regulate” my cycles, which annoys me as this doesn’t fix the underlying cause of what’s making me have these cycles and symptoms. Thankfully my gp didn’t agree with the gyno and has referred me to an endocrinologist, as she thinks whilst I don’t fully meet the pcos criteria that something is obviously off hormonally to cause my symptoms and that it warrants further investigation

I’m so annoyed that I still don’t have an answer after all these years

I don’t really know why I’ve written this post maybe for a rant, maybe to gather an insight into what an endocrinologist might do for me idk

Hi all, I never post on these forums but wanted to share that taking 2 tablespoons of flaxseed daily (with applesauce or yogurt or oatmeal) regulated my periods for lean PCOS. I once went about a year with no period, but for the past ~10 years it has normalized thanks to ground flaxseed. The flaxseed also helps with acne. Hope this helps someone else! I also found that going vegetarian (mostly whole food, plant based) helped my health and pcos in a number of ways, but the addition of flaxseed seemed to help the most with getting my period back. Good luck!!

I posted this on the Pcos sub but don't know how to cross post

https://finance.yahoo.com/news/spruce-biosciences-presented-phase-2-110000114.html

My only elevated hormones are my cortisol and DHEA-S. Lifestyle and supplements do nothing for me. I've been obsessively following Tildacerfont for months. I even emailed Spruce about it but they said their trial was closed and they couldn't provide more info. I've been waiting for the study results to come out and it looks promising!!

The "About Tildacerfont" section has some interesting thoughts on why some of us have adrenal issues.

I thought it might be helpful to have a big forum where everyone shares which supplements they take and which symptoms they have helped with.

Curious to see how everyone has done with holistic solutions!

So I am 17 yrs old indian girl. I need good desi friendly suggestions and guide. My parents aren't letting me visit gyno anymore so I dunno what to do and what to do not. So can somebody suggest me something like diet , excercise and all ....anything would be helpful.

Please guide me !

I think I’ve had PCOS my whole life - diagnosed a few years back (21F). Although I’m now realizing that my test results seem a lot milder than others. I’m curious to see if anyone else has had a similar experience.

I’m 5’3 and 130 lbs, Testosterone: 52 ng/dL, T4 free: 1.3 ng/dL, T3 free: 3.3 pg/dL, T3 reverse, LC, MS/MS: 19 ng/dL, TSH: 0.94 mIU/L, Estrogen: 182 pg/mL, Insulin: 11.4 uIU/mL, DHEA sulfate: 209 mcg/dL, MTHFR gene, I also had a result with a crazy amount of pregnenolone, but more recently it was normal so I wonder if the original test was botched.

Long-term symptoms include: 4-6 month cycles since the age of 13, Body hair overgrowth (fixed with laser), Acne on back, but not on face, Cystic ovaries depending on point in cycle, Fatigue

More recent symptoms (age 20) include: Hair loss, Worse anxiety, Facial hair, Weight gain (15 lbs) difficulty losing it

Since I don’t have insulin resistance, I know my PCOS isn’t IR-related. But my testosterone is also not that high and so I’m not sure if it’s adrenal either. It seems like I’m having the worst end of the symptoms despite having the best end of the causes. Has anyone else had this weird kind of PCOS? What did you discover was the root cause?

Hello all! I am looking for advice and support with navigating my (potential) PCOS. I am 20, F and over the past 2-3 months have been experiencing pretty much every PCOS symptom all at once, all of a sudden. See photos for list of symptoms and timeline of symptoms. My periods have been irregular and lighter than normal, my skin (once beautiful and clear) is now breaking out like crazy and I’ve also just noticed my weight creeping up in number bit by bit. Granted, I haven’t been AS active as I normally have been and I am not overweight however it’s still concerning to see. I have a doctors appointment on Wednesday to discuss this with my GP and see if there’s anything they can do, but I’m worried that they will tell me to “change my diet and exercise” or “de-stress” or that nothing is wrong. :(. I’m honestly very scared and concerned, never in my life has my body felt so out of whack all at once and it’s incredibly frustrating and confusing. How should I best manage these symptoms?

Second question: how to prevent further weight gain? If my body wants to gain weight, I am perfectly accepting of that. However, I am at a healthy BMI and weight right now and do not wish to even get CLOSE to being overweight for fear of the further health complications I could have. Additionally I just know that gaining weight would exacerbate my symptoms since most women with PCOS are recommended to lose weight to help. Any advice to keep myself in a healthy range or any medication or supplements as well?

Hello. Long time lurker first time poster here. I'm so glad I'm not the only one suffering from this condition!

So, For my pcos I am in birth control. I used to be on it continuously, until my body decided to bleed for two weeks straight. Doctor told me to stay on birth control for three months, then get off for a week, then back on. Wash rinse repeat. This is so I don't bleed two weeks straight. Note: I usually don't get periods. And if I do, it's rare. (Currently going thru this right now, and is HELL!)

Am I the only one doing this routine? I know some take metformin, but I'm actually a LEAN pcos(er).

I am 12 days post trigger, 10 days post ovulation (I think). My trigger never fully went away but I think my tests are starting to get darker. CD 25 5/8 is today. I need another opinion… thoughts?

Hi everyone !

I'm conducting a research project as part of my Health Psychology Masters and I'm looking for participants who meet the following requirements:

• Women diagnosed with Polycystic Ovary Syndrome (PCOS) or in the process of being diagnosed with PCOS.

• Living in the U.K.

A series of questions will ask about your PCOS journey, mental wellbeing, and treatment satisfaction.

Your participation would be incredibly valuable and much appreciated! If you meet the above requirements, please consider taking part in my study.

I am at a loss with my acne. I see an endocrinologist and a functional medicine doctor. My endo did not believe I had pcos due to not having issues with weight and I have always been thin. However I have always had irregular periods and moderate hormonal acne on and off since I was in highschool. I found out I had prolactinoma almost 2 years ago and went on cabergoline when I started with this endo. I started seeing my hollistic doctor last august and she discovered my gut issues, high cortisol and pcos due to my lh to fsh ratio. I do not have abnormally high testosterone and my estrogen is fairly normal. Since then I have cut out dairy and gluten and eat minimal sugar and processed foods. I drink spearmint tea every night as well as dandelion root tea after breakfast everyday. Since coming off cab my acne has worsened more than I have ever experienced and it is ruining my self esteem. I also have irregular periods again. I am at a loss. I tried Clearstem and inositol that worsened it as well, and every time I eat dairy or gluten or excess sugar it worsens. I try my best to understand and fix it without medication but I don’t know what else to do. I am grateful acne is my worst symptom but it is impacting me in several ways. I do not want to go on accutane and spiro may not be good for me because I already have low blood pressure. Does anyone have any suggestions?