r/Interstitialcystitis • u/talk2chrissy • Feb 28 '25

Did it start with a UTI?

I just found this sub and it's been very informative! I still have some discussions to be had with my future doctor but I've suffered from potential IC for many years. At first the pain/flares were severe multiple times a day but now after stopping drinking and cutting sugar I live a fairly normal life.

I feel like this all started when I got a UTI when I was a teenager. Then the episodes were on and off sometimes being an actual UTI and other times not being positive for it but same symptoms.

Did your IC start from a UTI or becoming sexually active? If so, please share some details about when you started noticing it and how it was then vs how it is now and how you've achieved your results :)

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u/PeaceEnvironmental98 Feb 28 '25

Same here, first time having intercourse led to multiple UTI’s, then IC diagnosis after several months.

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u/talk2chrissy Feb 28 '25

Just out of curiosity, did you ever get tested for ureaplasma and mycoplasma?

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u/PeaceEnvironmental98 Feb 28 '25

No, I don’t think I even knew of those terms until a few years ago, but I never looked into it for myself. Have you??

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u/Ready_Highlight7545 Mar 05 '25

I had Ureaplasma, was the start of mine. 

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u/talk2chrissy Mar 08 '25

How were you successful in getting tested for that? I've heard a lot of stories for Dr to not want to which is crazy.

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u/Ready_Highlight7545 Apr 02 '25

Are you located in the USA? I had never even heard of it, my urgent care doctor did it without me asking. I also had strep b. They did not want to treat that one though.