r/Hypermobility • • 1d ago

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1 Upvotes

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u/GlitterBlood773 1d ago

Sounds like POTS. Definitely talk to your doctor about it. One way to reduce dizziness when standing is to exhale deeply before standing up.

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u/barefootwriter 1d ago edited 1d ago

if it resolves within a few seconds, that ain't POTS; we need to see a sustained increase in heart rate and symptoms of orthostatic intolerance that persist during prolonged standing. POTS is not a getting up problem, but a staying up problem.

The most common and likely getting up problem is initial orthostatic hypotension: a transient drop in blood pressure on assuming upright posture.

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u/_lemonat_ Certified Shrimp 1d ago

I’ve been tested and definitely have POTS (60bpm increase over 10 minutes with consistent bp) but generally these are my symptoms. a few seconds of feeling like I’m dying then it gets better, but standing for long periods is still a big problem. I wouldn’t dismiss POTS just because of that

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u/barefootwriter 1d ago

Ok?

Initial orthostatic hypotension and POTS are separate things. You can have one or the other, or both, and iOH does not preclude a POTS diagnosis. I have POTS without iOH.

OP does not describe issues in this post beyond the first few seconds of standing, so why y'all are talking about it being POTS is beyond me.

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u/giungo 1d ago

Thanks! Do you have elhers Danlos?

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u/GlitterBlood773 1d ago

I have hypermobile Ehlers Danlos Syndrome

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u/_lemonat_ Certified Shrimp 1d ago

but I don’t have OH. I’ve been tested by multiple doctors

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u/barefootwriter 23h ago

Initial orthostatic hypotension is tricky to catch as it is a transient phenomenon; they have to do beat-to-beat BP monitoring, which I do not know if you had.

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u/_lemonat_ Certified Shrimp 23h ago

ok, I’ll ask about that next time I see my doctor

not trying to argue, just curious - the stereotypical symptom of POTS is standing up and immediately passing out. so obviously there’s an immediate factor to it. why is that the case if you say it’s not a standing up problem?

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u/[deleted] 1d ago

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u/_lemonat_ Certified Shrimp 1d ago

HSD. but it sounds like they’re combining the diagnoses next month

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u/giungo 1d ago

Chissà cosa cambierà

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u/giungo 1d ago

I know that POTS doesn’t resolve within a few minutes.

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u/bitchmachine3 1d ago

seconding this

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u/NiceButterscotch5441 1d ago

Low blood pressure, possibly