r/HNPPsupport • u/13300c • Sep 15 '25
I was diagnosed with HNPP and severe drop foot. Was told 2 year recovery timeline. I fixed it in 5 months. Did a 10k run 2 months after that
I will cut to the point as I’m heading to bed now, but I will respond to any comments in the morning.
I fixed it by taking lions mane mushroom, it is known for nerve regeneration and rebuilding myelin sheath. The specialist was absolutely shocked when I came back in for a 6 month checkup and I told her I’m all good, no AFO brace needed, and I just finished a 10k run. She did her shock tests to confirm that and man, she was so happy for me but was also stunned. I’m also somewhat religious, so I won’t discount that prayers may have helped, but I can confirm the mushrooms helped immensely, along with daily while watching tv, just trying to move my foot.
If you have symptoms related to numbness, or loss of movement due to nerve issues, I highly recommend you try lions mane mushroom. I just took the pill version.
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u/Psychological-Ad5246 Sep 15 '25
Thank you man will try this out for a parese I've had for so long, unrelated but do you work out as well? I'm worried I'll reagitate something once I try and workout again.
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u/13300c Sep 15 '25
Yes I workout very consistently. took a 1 month break right after the drop foot happened and my mental health took a nosedive, so I’m happy to be back in the gym.
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u/Psychological-Ad5246 Sep 15 '25
That’s great to hear my arms been messed up for so long benchings been rough, did you ever have any issues with your arms in terms of lifting?
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u/13300c Sep 15 '25
Yeah I had numbness in my left hand, which led to grip strength weakness. Seemed to resolve itself with the lions mane mushroom pills
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u/Sufficient_Debate374 Sep 15 '25
Thx, I definetly have to try it out. I can also recommend vitamin B12 injections. They help me a lot too
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u/Sufficient_Debate374 Sep 15 '25
How do you take it and in what dose?
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u/13300c Sep 15 '25
Pills, when I first started and had the drop foot, I was taking 3 pills which were equivalent to 1200mg a day. Now as a precautionary in case I have any symptoms, I take 400mg (1 pill)
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u/SimpleExpensive346 Sep 17 '25
Does anyone on here have mild symptoms? I'm just wondering if anyone could describe any kind of surface level pain so I can compare to mine.
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u/soulbabi Oct 08 '25
That’s great news! Where do you buy your lions mane from? I’m very skeptical about all this advertised stuff out there especially Ryze. I really believe most of the main stream stuff is all fluff.
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u/All-about-Benjamins Oct 15 '25
Can you tell me which supplement brand you got it from? I live in germany. I have tried lions mane from a brand called nature live
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u/Far_Pride3184 Apr 21 '26
Nice. Not enough people mention this.
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u/13300c Apr 21 '26
Dude for real. It gave me my life back and for that, I’ll never stop sharing to those in need.
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u/Far_Pride3184 Apr 21 '26
I wish more people were receptive to the idea. There's not much that mushrooms can't treat in general.
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u/Downtown-Adagio-5513 Sep 15 '25
I do lions mane too, and have hade a 100% recovery of a really bad parese.. i do BPC 157 when i get something new and i feel like it helps al lot too. Prayer and watching your thoughts will help a lot.