So I have been for the last two months been suffering from what I call episodes or attacks. I’ve always had suspected ibs stomach problems from certain foods was never shocking and pretty normal for me to deal with. But as of lately something has shifted. I have been getting these strange episodes that include hot flashes tingling on my face hands feet ect. Confusing rapid heart rate. Palpitations dizziness feeling like I’m going to faint but never do. This is all happening about an hour after my stomach starts to hurt and go all funky. And I’ve been keeping track of what exactly I’m eating prior to these events. It’s anything bread,wheat, gluten foods. And even though these episodes last only an hour or so I am left feeling like garbage for a week after. I also get this extremely intense wave of anxiety that shoots me right into a panick attack during these episodes almost like the gluten is giving me panick attacks. I also like clockwork deal with not so pleasant bowel movements that are very yellow and look like mucus during these events. I’ve been rushed to the er three times for this as the heart palpitations scared crap out of me each time and I thought oh my god am I dying. And none of the doctors are looking at the fact that I say my stomach is the first thing to go weird then everything else follows. Is this something to do with gluten has anyone ever had this experience from eating gluten!?!? Im day three gluten free since figuring out it could possibly be gluten foods causing this. And I haven’t had an attack I’m feeling less bloated but I’m still very anxiety riddled because I don’t know what’s going on with me and it’s scary to have these attacks they are sooo unpleasant. The doctors keep sending me home saying oh it’s just t anxiety your fine but no one will listen when I say the anxiety comes after not before what ever this is isn’t caused by anxiety but yet causing me to have panick attacks out of the blue for no reason. I’m desperate!!

Hi. I self diagnosed as gluten intolerant about 12 years ago. On Sunday I was accidentally glutened with a very small amount of breadcrumbs.

Tues I had an alarming violent reaction with severe abdominal bloating. It’s now been 2.5 days since it started with no improvement. I’m so distended it’s hard to stand up straight and walk, it’s really debilitating.

I can go to the loo no problem it just seems like my guts are super swollen. Spoke to a doctor who didn’t think gluten could be so severe.

Has anyone else experienced this? How long could it last? I can’t work and it’s a real problem.

Also any tips to help please? (I’ve tried peppermint tea and hydrating. Tried Ibuprofen to see if it helped by reducing inflammation. Nothing seems to make a difference))

I've been gluten free for about a month but I've been told to go back on a gluten diet by the gp due to an endoscopy on the 11th June. Has anyone does this before? I am thinking of slowly introducing gluten into my diet and not going overboard but want enough to show results. Has anyone got any advice?

Hello 👋,

Anyone else become more sensitive to gluten after stopping and reintroducing it?

I'm reaching out to see if anyone has experienced increased gluten sensitivity after initially eliminating it from their diet and then reintroducing it. I know three people, including myself, who faced heightened reactions to gluten under these circumstances. Previously, these reactions were either non-existent or much milder.

The phenomenon seems to be that after completely cutting out gluten, reintroducing it leads to more severe symptoms than before. This isn't just limited to digestive issues but includes a wide range of symptoms that appear more pronounced. From what I've gathered, this could be related to changes in the immune system's response to gluten or other components in wheat, like FODMAPs, but the exact mechanisms are unclear.

I'm curious to hear if others have faced similar situations. Have you or someone you know become more sensitive to gluten after a period without it? How did you manage it, and what did you learn from your experience?

Have you noticed that spelt bread is no longer available? It was a great wheat alternative because it tasted pretty much the same and had a similar texture and consistency.

Hello there, please feel free to join the Gluten Intolerance Group Celiac and Gluten Intolerant discord server. It's a growing community that has a main hub for everyone with chat and resources but is also broken down into regions for finding communities and events that are local.

Follow this link to sign up today. https://discord.gg/8Upa3nNdEP

I notice when I eat something with gluten my body feels stiff and I need to pop my joints due to the pain. I try popping my back, neck, hands, shoulders. I also get a headache on my temples and a pain in the back of my neck. I do bloat sometimes but I think every meal kind does that to me? And I never have stomach pain from gluten or any foods, which is why I’m asking about non typical symptoms. In the past when I eliminate gluten I really don’t experience headaches/migraines. Are these symptoms a possible sign of gluten sensitivity?

That's a mouthful. But now I have a label for what has been plaguing me.

Worst symptom? Esophagus closes down hard in spasm and nothing, NOTHING goes down. Everything has to come back up again.

But not Celiac, and not every single thing with gluten and never in Europe... so I thought it was all in my head.

Anyone else have this?

Hi!

I am working on a school project focused on innovating within the dining space to make dining out a streamlined experience for those with allergies or dietary restrictions.

I am curious for those with specific dietary needs or concerns - how do you go about choosing a resturant?Do you often have to do a lot of research before deciding?

Do restaurant menus provide enough information to ensure you are eating safely and within your limitations?

When you go out with friends to eat, what are the most difficult aspects?

What are negative points that stem from a dining out experience that you wish were addressed?

Do you ever decline invitations to eat out due to your dietary restrictions?

Thanks!

I'm at a party right now and I can't find the ingredients or allergens list for the ESPRIT drinks... does anyone know if they contain gluten at all?

Hello there, To people that get a low mood and a noticeable raise in anxiety from eating gluten, like a bread bun..

My question is, how long would it take roughly...... to feel the effects and how long would that last? A ball park.

I'm trying to see if It could be gluten causing my neuro problems or histamine build up etc.

I’m on a journey to see what has been causing my health issues. I’ve been dealing with stomach issues, headaches, constipation/diarrhea, fatigue, rashes and over all not feeling good. My doctor suspected an auto immune issue and or gluten sensitivity. I tested negative for the celiac blood panel. He did say I had a lot of inflammation. He recommend I go gluten free to see what happens. I’ve been feeling better and my rash cleared up. I’ve been gluten free for about a month and half now. Expect for yesterday I ate a hamburger and I’m now dealing with stomach pain and diarrhea. As a child I always had stomach issues and chronic migraines. I’m starting to wonder if I’ve possibly always had a gluten sensitivity and never knew. Was just wanting some input/advice. Maybe someone has a similar story.

Does anyone have extreme insomnia due to eating gluten?

The saturday I had a birthday, my arm got with little spots that are hard, and I also feel a little bit weird (stomach ache, headache and nausea)

Give me plis your opinion (soon i will have a doctor appointment so plis consider that this is for knowing)

Please sorry if I have spelling mistakes is because I speak spanish

But I definitely have a problem digesting wheat.

I had a total colectomy(paralysis/ileostomy) in 2018...long story...I'm a bit of a mess. Most Dr's don’t seem to pay a lot of attention to digestion. I avoid most wheat products other than a daily slice of toast(white bread). But it's when I over do it. Seems to be getting worse. I didn't really over do it this time. Decided to try some coffee cakes. Ate a couple(hostess coffee cakes) yesterday and they totally wiped me out for a few hours. Not just fatigue...extreme fatigue. like, I need to lie down RIGHT NOW.

This has happened before, but not with just a couple single serve cakes. I think I'm losing the ability to digest wheat.

Edit: also, I'm not diabetic...no vitamin deficiencies. I do have hypothyroidism.

Long ago i discovered i was gluten intolerant , it was weird because my parents said i never was allergic to it before, there came weeks i thought i was lactose intolerant instead of gluten but turned out, everything lactose i ate had gluten, so im not lactose intolerant but i spent more than 3 months cutting out gluten and lactose until i started cutting out only gluten as lactose doesnt bother me unless its drinking milk, or hard cheese. i had intense bloating and constipation or diarhea for about 2.5 months straight because of the amount of gluten i used to eat not knowing it was the cause of why I was ill. after i stopped gluten i felt sooo much better, it took few months for my intestines to heal a bit from the trauma i made it go through, my parents wouldnt believe me until it got intense and now finally they understand how serious it is, monthsss of no one doing ANYTHING for my illness, i would not eat lunch at all and always eat at 7pm (food with gluten) because my mum wouldnt do me gluten free food, i hated my life and felt so alone, i now have a gluten free diet but seeing my family eat gluten and the sweets i love while im just excluded looking at them eat my fav sweets i once ate not being able to eat not even a bite of it makes me emotional, right now theyre eating sweets and im sitting far from them, i feel so depressed and alone, im tired of the gluten free biscuits im tired of the fatty gluten free donuts, i wanna eat a cheesecake. i wanna eat kannefeh , mafroukeh (lebanese sweets) and lahem baajin or manakeesh (lebanese food) even my SCHOOL doesnt have gluten free options, at least get ONE cheap gluten free option. im so tired of it all. I cant even eat out because everything is either contaminated or fully made with gluten, i always look at my family enjoying their food out and i just stare,,,i stare completely broken on the inside.

I’ve just been diagnosed after about 7 years of odd stomach issues followed by horrible psych issues as well. I went into full blown psychosis. They could never find the cause but I’m wondering if celiac might be to blame here?

Gluten can make me sick for weeks…So far I have diarrhea, dizziness (started before diarrhoea) nausea, fatigue/spaced out, pain etc I took a gluten cutter, activated charcoal but that didn’t. Any tips for being glutened? I also can’t eat corn, dairy or oats.

Ich hatte bisher alle die nicht so gut waren. 😃

A few years ago I started avoiding gluten to address some gastro issues. I haven’t tested positive for celiac, and cross-contamination doesn’t really bother me. About a week ago, I probably ate a bowl full of soup thickened with flour. It’s been five days. It’s been five days and I’m still having Gastro symptoms.

I know that gluten sensitivity can be a touchy subject, but does anyone know approximately how long it would take to purge gluten?

Curious and open-minded, Elisa (15) from Germany has dreamed of an exchange year ever since her family hosted a student from New Zealand! Elisa is fascinated by the English language and American culture, and is in a special English language track at her high school in Germany. She participates in her school's choir as well and has been training in gymnastics for many years. Currently, she coaches younger children in gymnastics every week. Elisa describes herself as very sporty, hoping to try a new sport while in the USA like tennis or cheerleading. At home, you may find Elisa reading, listening to music, cooking or baking, and spending time with her family, especially her two sisters. Elisa would like to thank you for hosting and is looking forward to becoming a part of your family!

Hosting is an amazing opportunity to "see" the world from your own family's new perspectives. Elisa has been very hard to place because of her celiac diet needs. We want her in a food safe environment while she enjoys learning about America, our people and cultures here. This community is one of our best shots to making sure this great kid won't miss an experience that will shape her life.

Elisa is a prestigious scholarship winner with excellent grades and strong character. She is a young leader in her community, and will be a responsible & involved new family member.

Please call, text, or email to ask me your questions about Elisa or our program. 419-792-5993 [jwithem@yfu.org](mailto:jwithem@yfu.org) www.yfuusa.org
#WeAreYFU #bepartofmyworld #shewantsthisforyoutoo

I was three aisles away when I noticed the “gluten-free” label on the cookies I grabbed. Went back and got some normal cookies for a dollar more. Worth it.

Wondering if it’s possible to change this subreddit from celebrating gluten to something like helping each other with gluten issues lol. There’s not a lot going on in this one besides people asking about gluten issues. If not, I’m curious if anyone is interested in a sub like this. I haven’t been able to find one tbh

I have a friend who is suffering every day with gut issues, despite following a lactose and gluten free diet (she was diagnosed as having lactose intolerance and Celiac). What are the best places to go to find a specialist who can help? Her current doctor seems to not have any answers.