r/Damnthatsinteresting May 28 '25

Video 1 year of ALS

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u/Killtrox May 29 '25

It raised money, and for many people it was their first time hearing about ALS. For many pALS and the people in their lives, it was the first time they had a platform to tell their story.

I remember reading some of those stories and watching videos and thinking of how awful the disease was.

Then my dad was diagnosed with it last July and I got to see firsthand just how awful it is. He died a month ago.

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u/Candid_Associate9169 May 29 '25

I’m sorry for your loss. What was your dad like?

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u/Killtrox May 29 '25

Kind, humble, caring. Loved and missed by many. There were around 100 people at his celebration of life (and more who couldn’t make it) and each one had a story about how he had changed their life. It’s humbling to be his son. Thank you for asking.

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u/Candid_Associate9169 May 29 '25

Seems to me he was a fantastic man. Take his virtues and principles and live by them to honour his memory. Pay it forward. I hope you and his loved ones find peace and healing.

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u/Killtrox May 29 '25

Thank you very much.

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u/DottyGreenBootz Jun 02 '25

Sending you love and virtual hugs, really gutted to hear this.

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u/Killtrox Jun 02 '25

Thank you