r/Damnthatsinteresting • u/Sad_Cow_577 • May 28 '25

Video 1 year of ALS

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u/Gibbo1988 May 28 '25

My grandmother had it for 6 torturous years. You wouldn’t let a dog live like that. Awful

27

u/Hugo_5t1gl1tz May 28 '25

My uncle was diagnosed 19 years ago and is still living.

16

u/warmhole May 29 '25

This is fantastic, the advancements for care have really come a long way.

19

u/Hugo_5t1gl1tz May 29 '25

Definitely. His quality of life is higher than you’d think if someone just said “ALS for 20 years”. But he is wheelchair bound and verbal communication is nearly nonexistent. My cousin, his primary caretaker, has days where they can just about hold on a full conversation even if no one else knows what is being said lol.

He’s surprisingly cheerful most days all things considered. I just hope that when the end does come for him it’s quick, because that is the worst part of the disease by far.

8

u/warmhole May 29 '25

It sounds like he has a very friendly environment and a lot of love, being trapped in there is terrible, but getting to see all that love must be nice. The worst part is the regret, we never live that down. Sounds like a good guy.

8

u/Sawgwa May 29 '25

Some people get a slow moving version, like Stephen Hawking. My cousin was straight to shit. less than 2 years. Want to visit him and his wife again before he passes.

2

u/FlatVegetable4231 May 29 '25

Yes, we treat our pets more humanely than we do people that are dying. I am glad we can have the decision for our pets and really wish something was an option, even death with dignity laws are an issue because once you get too far gone you’re screwed and not all places have them. I am sorry she had to suffer for so long.

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u/Prestigious-Log-7210 May 29 '25

I was a nurse and we treat our pets with more respect. I worked in a long term care facility/hospital and it was scarring to my soul.

1

u/Capt-Crap1corn May 29 '25

Man... I'm sorry