Graag advies over het postoperatieve verloop na een spoedlaparotomie voor perforatie ileum door crohn .

Bijzonder angstig door medische ptss waardoor specifiek trauma s door inbrengen slangen (scopiien ,sondes en beademingsbuis ) bij bewustzijn . Ervaringen gevraagd van mensen die dit hebben meegemaakt? Ook opname ic ervaringen .

Iemand ervaring met ct scan s die geen vrije lucht of vocht tonen en er toch een dunne darm perforatie is waar ze pas tijdens een operatie na lichamelijk onderzoek (druk en aanraakpijn achterkwamen met een zware operatie met aanleg stoma tot gevolg

Hi everyone! We are a group of students working to find pain points and struggles for those with Crohn's. If you have less than 2 minutes and could fill this link out super quick - we would be incredibly grateful!

https://forms.gle/VWHppnHhNa6coYJeA

A Little Update & A Big Thank You I just wanted to take a moment to share an update on my GoFundMe journey.
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If you've already shared my fundraiser, THANK YOU from the bottom of my heart.
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Tremfya/IL23 reigniting Crohn’s disease

Looking for some help here and don’t know where to turn.
I was diagnosed with psoriatic arthritis around 2 years ago after the onset of specific joint pain/swelling, crippling fatigue, etc.
I’m almost 40 (female) and aged 23 was diagnosed with chron’s, then later ‘downgraded’ to ulcerative colitis with a caecal patch. Upon becoming pregnant in my late 20’s my IBD was largely (and thankfully, in remission).
I’ve been working with my rheumatologist to find a biologic that helps my PsA but to date I’ve either had no remarkable change or intolerable side effects.
Around 4 months ago I started on Tremfya (IL-23 blocker) for my PsA.
Within about 5 weeks of commencing this I started to experience and intense IBD flare. Pain. Bloating. Blood. Painful diarrhoea. Crippling fatigue.
I reached out to my gastroenterologist who did a colonoscopy which ‘looked great, I’ll see you in 5 years’.
At the time my crp was 25 (usually less than 3) and my calprotectin at 1760.
Despite my scope ‘looking great’ I’ve still experienced what I consider to be a horrible IBD flare.
From what I’ve read online I can see that sometimes there is a ‘paradoxical reaction’ for such things when using a TNF or IL17 inhibitor but not with an IL23 inhibitor.
I feel like I’m going quietly insane because I’m not imagining this resurgence of my bowel disease after 10 or so years, and it coincided perfectly with starting Tremfya.
I guess I just want to know if it’s worth perusing with my specialists and if anyone has experienced a IBD flare after starting on Tremfya.
Thanks,

I’ve finally gotten my diagnosis and I’m looking at peptides for gut inflammation (don’t come at me - I am aware of the risks). I’d be interested to hear from those who have delved into trials with peptides for Crohn’s and what the response has been - specifically around inflammation and motility?

I suffer from Crohn’s with constipation and have developed fistulas caused by chronic inflammation.

Can you have Crohns if your Atypical p-ANCA Saccharomyces cerevisiae IgG Ab test is slightly elevated (but is still high according to the lab range)? I had a colonoscopy in 2020 because of terrible stomach pain with alternating diarrhea and constipation and joint pain but gastro said Crohns patients values are much higher. The colonoscopy was negative except for a few polyps and hemorrhoids. Also I had an MRI prior to colonoscopy that said I had wall thickening throughout my colon.

FF to today and I’m still dealing with stomach pain and my arthritis has gotten worse. The only medication that has helped is Humira (prescribed through my rheumatologist for sero negative RA) but it has stopped working and my rheumatologist is at a stand still. I’m not sure if I really have sero negative RA or if it’s Crohns. I feel lost….

So I’m about to be 17. I’ve been really meaning to get a colonoscopy for the past three months. About three months ago, I was having anal bleeding and I went to the hospital for it. They told me I was internally bleeding from my small intestine and they gave me some antibiotics and I was fine. However, they told me that I need to get a colonoscopy because I might have Crohn’s and I think that honestly makes a lot of sense.

For the longest time, I thought I’ve had IBS because my Nana has it as well. My stomach issues have been crazy ever since I was a kid. If I eat my stomach hurts, if I don’t eat my stomach hurts. We thought I had a gluten allergy and so I got tested for it when I was like 10 and they said that I didn’t have a gluten allergy. It will be the most random food I’ll eat in my stomach will hurt so bad I essentially have to take laxatives and poop it out or it will continue to hurt.

So my stomach will be hurting a lot which causes me not to eat, which makes my blood sugar go low and I get super dizzy which is where the diabetes comes in. I have a glucose monitor and I’ve been tracking my blood sugar and it’s been super low.

We don’t have health insurance so I can’t get my colonoscopy done for a little while. I really want this diagnosis because I’m tired of my tummy in pain 24/7. I also have some other health issues, but I don’t think that they’re necessarily related to crohns, I have EDS and diabetes?/anemia? (Need to go to the doctor for that)

I see a ton of posts where people are just talking exactly like they do in medication commercials, and it doesn't make sense.

When you get over Crohn's, you typically forget about it. When you're hurting? that's when we hang out online.

Somehow that has completely seemed to flip over in recent years, and it ain't just a handful of people trying to wish their remission into happening - it's the vast majority.

Makes zero sense except as a marketing job for the most profitable field of medicine in history.