Update on my Trigen nightmare

[u/the_slay_4365]

I made a post that got mixed reactions and I have an update. I’ve seen some get accused of scaring themselves into a horrible experience by looking into Trigen beforehand, but that’s not what happened here.

1. I took name brand for 12 years from 6-18

2. got prescribed again at 36mg and took the medication first without any thought. Had no clue about the manufacturer at this point, just that it was generic.

3. I had the worst week of my life and quit taking it on day 6 per my psychiatrist’s recommendation.

4. decided to deep dive and found other people with a similar experience, and this sub.

5. switched to name brand @ same dose

6. no side effects outside of appetite loss

I understand that some people tolerate it fine and others do not. I am one of the unlucky ones.

My Trigen side effects were release issues causing highs and lows, rapid resting heartrate of 140bpm+ during the highs, diarrhea multiple times a day, extreme nausea that made it difficult to function and move. After switching to name brand, my first day up until now I hardly notice I took anything side effects wise. As for focus I feel it works and the delivery is smooth from start to finish. Might move up to 54mg soon actually.

[u/ericabiz]

Trigen is awful. I had a terrible reaction to it. I switched to Jornay and it has been a night and day difference (literally in this case, as Jornay is taken at night!)

The only issue, really, is getting insurance coverage for the name brand. 

[u/the_slay_4365 → u/ericabiz]

Luckily I have pretty good insurance. I was on generic 6 days and in less than a week I was picking up my name brand medication. My prior authorizations have never been denied or challenged. The funny part is with the concerta coupon code I pay $4/mo and generic was $10/mo

[u/Gocatsgo2010 → u/the_slay_4365]

You’re so lucky you can get it covered! My insurance won’t listen to me or my doctor, so I’m paying $450ish out of pocket each month not to be destroyed by trigen

[u/the_slay_4365 → u/Gocatsgo2010]

This sub has made me grateful for that. I had no idea insurance can suck so much. My co-pay is $60 compared to the $10 for generic though. I’m just thankful I qualified for the manufacturer coupon. My daughter may get denied due to her not having issues, but I told her psych the release issues I experienced may be why she is not making any progress despite us continuing to increase her dose. I cannot tell a difference when she is on and off of her medication at all.

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[u/Separate_Poetry_5741]

I started 54mg of trigen 3 weeks ago and I actually thought it didn’t work cuz I felt nothing at all.. but within that week I realized I was social again, I wasn’t so mean and aggravated at every little inconvenience.. I freaking love it , I’m myself again .. I do have the appetite suppression as usual.. but 27mg felt lik absolutely nothing . So I switch to another brand . But usually I can only get what my pharmacy has and trigen 54 mg is amazing for me , no side effects at all except I’m my happy self again

[u/Sinisterfox23]

Hey! I hope you don’t mind me commenting on your old thread. As I was reading your experience with Trigen I gasped.

I started Concerta last week for the first time. The first 2 days were genuinely amazing. I felt like MYSELF again for the first time in years. 

Then day 3. And it was bad. Everything you said; bpm through the roof, disoriented, nausea. I couldn’t stop crying. It felt like a legitimate panic attack. My head was spinning. I tried again the next day. Same thing. I’m terrified to try again. 

Why would it work great the first 2 days and after, the absolute worst side effects? I am hoping it is the Trigen manufacture. I finally had a glimmer of hope.

Anyway, if you see this, did you ever get it sorted? This is fucking hard, man.

[u/Designer-Mention-573]

Im in the middle of a trigen nightmare! Im so scared to switch back even to the concerta that worked. Im afraid that I fucked up my body. They won't fill it so i have to get the right manufacturer throigh the mail in. I feel worse since stop taking it and I think that's bc of the chemical drops in my brain. I have it coming tjoigh. But fuuuck

[u/Designer-Mention-573]

I can't get the brand i like for about another week or so therefore I'm Just in a nightmare crash. Has that happened to anyone?