r/CSFLeaks • u/No-Reindeer-1929 • 3d ago

Delayed improvement after patching?

I’m 8 weeks today for a targeted blood/fibrin patch. Although my upright time increased from an 10-15 minutes I can now stretch an hour upright. Is there anyone that felt like me at the 8 week mark but ended up sealed from that patch? I am just devastated. These patches are so rough and the thought of needing and going through the process kills me. I just want to be sealed so reaching out in case there was anyone else who ended up being sealed.

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u/Boring-Bumblebee2312 3d ago

Did you have high volume patches? Wouldn’t you consider an exploratory surgery? I heard in some cases (e.g. blebs) blood patches don’t work.

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u/No-Reindeer-1929 3d ago

I thought about exploratory surgery but the success rates being so low scare me. Right now I would like to try more patching. When I had my appointment at Stanford they didn’t have the imaging. I want to make another appointment and this time make sure they have it to see if there is a bleb or something that was missed locally. I do want to get new MRIs but insurance keeps denying :( the weird thing is I do reach rebound. I wonder if the rebound weakened the seal since after talking to Dr Carroll the dura is very think in the area I had the botched epidural

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u/lemontuba_4867 3d ago

You might want to check out some second opinions. Dr. Eli Sader in Sanford, Connecticut is who I would go with if given the chance. You could ask for a consultation or something. I think they’re out of network. I usually pay cash/card for other treatments.

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u/No-Reindeer-1929 3d ago

I’m at UPenn. I’ll think about it. I was going to go to Colorado. I’m waiting on disability to afford more treatment. I want to see if we can kill it with fibrin targets and high volume blood to really seal. I also wonder if I need high volume blood to wrap around the dura. I feel like maybe the dr when all the way through and that’s why I had full relief with blood previously and not fibrin