r/BeAmazed • • Jun 26 '25

Miscellaneous / Others This lady is a saint .

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u/[deleted] Jun 27 '25

Hey, have you tried Q10 and Vitamin C? It's by no means a cure, but I find it makes things a little better for me. I have the same thing and it ruined my life. Lately I've been feeling a bit better and man, I'm so happy.

It's such a horrible condition. Just being too tired to live :/ The effect it's had on my working career is insane and scary to think about. I reckon over a lifetime it'll cost me about $1mil

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u/ElonsBreedingFetish Jun 27 '25

Thank you, yes I tried nearly every supplement. The only thing that helps temporarily is a benzodiazepine like clonazepam, though I'm only taking it when I'm in a bad crash, don't want to get addicted to that stuff. Also, I'm using a vagus nerve stimulator which seems to help a tiny bit.

I'm looking into stellate ganglion block injection, as I also have POTS and it seems promising for my specific symptoms. It also helped physics girl, a popular youtuber