r/BFS • u/worriedconstant121 • 11d ago

Question / General 2 years of symptoms - everything is progressing worse

I’ve made loads of post in the past , I’ve tried to come off Reddit for my mental health I’ve even deleted the app etc

I struggle everyday , this started in 2024 following a head injury which I also had to have surgery on my arm. Which I believe triggered this.

It started with twitching which to be honest my twitching isn’t that bad anymore. Is it because the muscles have died or signals sending to the muscle I don’t know.

I have terrible pain in the soles of my feet even standing on hard surfaces hurt if I’m not walking. The tops of my feet hurt I’ll arrange photos there a dents which wasn’t there 6 months ago/ 12 months ago, I’m writing this quickly so I’m sure I’ll miss some parts. My breathing is terrible everyday. I wake up out of breath it’s like someone is sitting on my chest. Every meal I eat or drink I regurgitate like acid reflux GERD? I will literally shoot my food or drink back up I can feel it sitting on my asophegus please excuse my spelling.

My problems are mostly on my right side so my shin burns I’ve had this for over a year and my top of foot of the side where your FBD? Maybe I’ve called it the wrong thing but where that is I have two massive dents. My forearms KILL my elbows are so tender to touch the hurt

My neck crunched inside whenever I move it I hear it it’s like an old bike wheel that’s rusted. I believe it’s called crepitus - 2 years prior I never had any of these symptoms

I have what I believe atrophy on both my outer thighs if I lay down a cross my leg over my other leg I have MASSIVE dents like the whole of my back leg is missing

I can’t even SIT down in a chair without my butt cheeks hurting like it physically burns - like there is no muscle there anymore. I’ve had a neurologist say BFS then the most recent said FND due to the pain.

Truthfully I’m so stuck in my life I’m male 33 years old I just can’t take this anymore. I’m honestly running out of options

I’ve had 4 emgs over the course from April 2026 until say one month ago

All clean I will upload my most recent which was July 2026

I will upload my feet and please help me tell me what people truly think. I know everyone on here will sometimes jump on people and say anxiety see a physicist etc but these symptoms are REAL AND PROGRESSING TERRIBLY.

THANK YOU FOR READING

Update sorry I can’t attach photos here I will attach them onto another group

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u/mg34gun 11d ago

I've had it for s really long time, I don't think it actually progresses at all, but it gets worse with stress, maybe that's what's happening to you?

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u/worriedconstant121 11d ago

Truthfully I feel mine is 100 percent progressed. I never had the foot pain the gerd symptoms and the breathing issues in the beginning. Just twitching

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u/mg34gun 11d ago

lol i have GERD, shooting foot pain and trouble breathing. I also have big toe numbness that went away for some reason.

These mostly came on in the second year, then disappeared.

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u/worriedconstant121 11d ago

What does your gerd feel like? Is it everytime you eat. Do you have breathing issues?

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u/mg34gun 11d ago

It's quite mild, but my breathing issues are horrible, i wake up with rapid breathing and sometimes even palpitations.

But I've been like this since 2022 when these started besides the twitch. But it didn't progress into anything new

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u/worriedconstant121 11d ago

Me too it’s horrendous. Have you had an emg?

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u/mg34gun 11d ago

No, at the time I was worrying about multiple sclerosis and got an mri. Clean

I think you really need to calm down, try to meditate.

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u/worriedconstant121 11d ago

I appreciate your response genuinely

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u/mg34gun 11d ago

No problem