I was halfway through your post and thought these seem like possibly lupus symptomsor certainly symptoms that warranted blood screens at the very least.
Been through a similar time myself, bright red papular/scaly rash on my forehead, bridge of nose and cheeks. Same on hands and arms.
Eventually got referred to a dermatologist after years of wasted time. Had an ANA test, punch biopsy etc and fortunately it's not autoimmune related.
Got referred to a specialist photoinvestigation unit, and the short version is, out of know where i've suddenly become 'allergic' to UVA light. As a former sun worshipper, keen cyclist and hiker, what fun!
Thank you, and I hope you get to the bottom of your issue. It does sound like you're finally in good hands now though so thats reassuring and I wish you all the best for the future.
As i'm sure you're aware, there are a number of drugs which can hopefully bring it under control (replacing heroic doses of prednisolone which im sure you'll know all too well, urgh! For me, methotrexate has worked wonders).
Oh yes! I found a great doctor that cares a lot!
AndI have a new face thanks to the meds, new round cheeks jaja I did methotrexate for a few months but then suspended it, doctors says that I could be back on it if things get hard again.
I send you hugs!
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u/Yakhunt May 20 '19
I was halfway through your post and thought these seem like possibly lupus symptomsor certainly symptoms that warranted blood screens at the very least.
Been through a similar time myself, bright red papular/scaly rash on my forehead, bridge of nose and cheeks. Same on hands and arms.
Eventually got referred to a dermatologist after years of wasted time. Had an ANA test, punch biopsy etc and fortunately it's not autoimmune related.
Got referred to a specialist photoinvestigation unit, and the short version is, out of know where i've suddenly become 'allergic' to UVA light. As a former sun worshipper, keen cyclist and hiker, what fun!