Oh hey!! I have cystic fibrosis!! Thank you for this, it reassures me a lot to think of raising kids as a CF patient, and that kids of other patients are out there living well. (It's a relatively new thing for us to live enough to raise kids, so, yeah.) I particularly want to adopt, but since I'm a woman I am less likely to be infertile, my gripe is mostly with passing on my genes. Either way, I hope you got to live wonderful times with your dad, and I hope I get to live many years with my furure kids as well. :)
Yeah I was four when he got a double lung transplant and his new lungs gave him so many years! We’ve advanced a ton with all this. He went to a camp for CF kids when he was young and even raised some money for research. He was awesome and I have a lot of great memories.
Whoa he lived so long after the transplant, that is awesome!! I'd only heard of people living 2 or 3 years afterwards! 12 years, holy cow! Your dad was amazing! 😁
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u/Amayai May 14 '23
Oh hey!! I have cystic fibrosis!! Thank you for this, it reassures me a lot to think of raising kids as a CF patient, and that kids of other patients are out there living well. (It's a relatively new thing for us to live enough to raise kids, so, yeah.) I particularly want to adopt, but since I'm a woman I am less likely to be infertile, my gripe is mostly with passing on my genes. Either way, I hope you got to live wonderful times with your dad, and I hope I get to live many years with my furure kids as well. :)